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Tracheostomy Patient Family Advisory Council

Graphic of four hands reaching for a heart and the words: PFAC patient family advisory council TRACHEOSTOMY

The Tracheostomy Patient and Family Advisory Council focuses on improving the hospital and community experience for children with trachs and their families. Our members are current and former trach parents that have a drive to build community support for these special needs families.

Accomplishments

  • Hosted the 2nd annual Trach Family Day in June 2019 with the theme “Every hero has a story”
    • Fox 4 News provided TV coverage
  • Held the first Tracheostomy Program T-shirt fundraiser
    • Raised over $1000 to support Trach Family Day 2020
  • Started hosting a monthly question and answer session for parents
    • They meet on the 4th Thursday of every month from 6-7pm;
    • A time for new parents and caregivers to talk to other trach parents/caregivers
  • Partnered with St. Louis Children’s Hospital to advocate at the capitol in Jefferson City, MO
  • Created an Educational display to present to Global Tracheostomy Committee
    • The display highlighted questions and answers related to tracheostomies, patient stories, and education taught at Children’s Mercy
    • Provided continued feedback for the overall growth of the Tracheostomy Program

Application

If you have read through the bylaws and feel like this committee would be a good fit for you, please fill out an application.

Contact Us

Emily Keeven
Co-facilitator
ejkeeven@cmh.edu

Kylie Higley
Parent Support Program Coordinator
kahigley@cmh.edu

Laura Miller
Coordinator, Patient and Family Engagement
lmiller2@cmh.edu

Tracheostomy Programs

The Infant Tracheostomy and Home Ventilator Program helps babies who need prolonged ventilator assistance to live at home while still receiving the respiratory support they need.

The Pediatric Tracheostomy and Home Ventilation Clinic at Children’s Mercy brings together all your child’s breathing specialists—pulmonologist, ENT and respiratory therapist—in one place. 

Parents Offering Parent Support (POPS)

Children's Mercy offers a program called Parents Offering Parent Support (POPS), a network of trained parent volunteers who mentor other parents through the challenges of their child's health condition. Click the button below to learn more about requesting the support of a mentor or becoming a mentor yourself.