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IBD Patient Family Advisory Council

The IBD PFAC partners together to create the highest level of multidisciplinary, collaborative care, focusing on the whole child and their families. Their focus is to offer insight and collaboration as partners and to represent families living with IBD.

Graphic of four hands reaching for a heart and the words: PFAC patient family advisory council INFLAMMATORY BOWEL DISEASE


To co-produce the highest level of care for the pediatric IBD patients and families at Children’s Mercy.


Families and IBD health care providers working together to improve outcomes and create exceptional service.

How We Do it


  1. Consistent communication between the IBD PFAC and the IBD clinical team

  2. Provide patient and family perspective on policies and procedures, service excellence, and exceptional education for patients and families in both inpatient and outpatient settings

  3. Maintain a fresh and engaged IBD PFAC


If you have read through the bylaws and feel like this committee would be a good fit for you, please fill out an application.

Contact Us

DeeJo Miller
Patient and Family Engagement Program Manager
Improvements Institute
(816) 302-3851

Parents Offering Parent Support (POPS)

Children's Mercy offers a program called Parents Offering Parent Support (POPS), a network of trained parent volunteers who mentor other parents through the challenges of their child's health condition. Click the button below to learn more about requesting the support of a mentor or becoming a mentor yourself.