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Pediatric Tracheostomy and Home Ventilation Clinic

 

The Pediatric Tracheostomy and Home Ventilation Clinic at Children’s Mercy includes experts from pulmonology, ENT, respiratory therapy and speech-language pathology. At this clinic, you can see all your child’s tracheostomy specialists in one place. This reduces the number of appointments for you and improves coordination of care among your child’s doctors, nurses and therapists. 

Our clinic team cares for children of all ages who have a tracheostomy. Some children also have a home ventilator, which we will monitor at your appointment along with their tracheostomy. Whether you’re coming to us as a graduate of the Infant Home Ventilation Clinic or transferring care from another provider, we will do our best to help you feel comfortable and cared for while you’re here. 

In the event of an emergency, Children’s Mercy is the only health care provider in the region that always has every pediatric size of trach tube available. Our Tracheostomy team also trains community health care providers in trach care so that they can provide excellent care for children with tracheostomies at school, daycare, and during medical emergencies. 

Meet the ENT team.

The Tracheostomy team works closely with your child’s pediatrician or primary care provider to coordinate their health care needs. If you have questions or concerns, you can call one of our nurse coordinators at (816) 234-3040 (select option 5). Established patients can also send us a message through the patient portal.

What to expect

 

When you come to the clinic, you can expect your appointment to last 40-60 minutes. Please bring the following items with you: 

  • Any medical records from previous providers, if outside of Children’s Mercy 
  • Your child’s emergency trach bag
  • A communication device, if your child uses one 
  • A list of any questions or concerns for your care team 

As you meet with all your providers, they will be looking at your child’s trach and vent, but also assessing your child’s overall ENT health. 

Tracheostomy Patient Family Advisory Council

The Tracheostomy Patient and Family Advisory Council focuses on improving the hospital and community experience for children with trachs and their families.

Important information about suctioning during COVID-19

Suctioning is considered an aerosol generating procedure that spreads respiratory secretions several feet. Because of this, we ask families to please not suction in the waiting room unless it is an emergency. 
 

If you are in the hospital or at an appointment, please let registration know that your child has a trach and you may need to suction. We will get you to a private room as quickly as possible so that you can provide this care. 
 

We understand that there are times when you do not have time to get to an area away from others to suction. Whenever possible, please wait to suction your child until you are in a room by yourself. However, if it is an emergency, move as far away from others as you can. 
 

Please reach out to your tracheostomy provider for any questions or concerns. 

Stories

Complications of prematurity: Kieesha's story

Born at just 26 weeks’ gestation, Kieesha Pentlin may have complex medical needs, but with the Children’s Mercy Level IV Neonatal Intensive Care Unit on her side, today she’s not just surviving, she’s thriving!

Meet Kieesha
Kieesha Pentlin laying down with her arms behind her head and smiling.