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Hem-Onc Teen (HOT) Advisory Council

Graphic of four hands reaching for a heart and the words: PFAC patient family advisory council HEMATOLOGY ONCOLOGY TEENS

The Hem-Onc Teen (HOT) Advisory Council was started in 2013 as part of the Hem/Onc Adolescent and Young Adult (AYA) Program with the goal of improving care and support for our AYA patients receiving treatment for cancer or blood disorders.

The purpose of the Hem-Onc Teen Advisory Council

 

  • To provide Children's Mercy with a hematology/oncology focused patient advisory board representing various ages, backgrounds and communities.

  • To give an opportunity for a representative group of patients to express concerns, ideas and suggestions.

  • To have Children's Mercy staff listen and support the board.

  • To give teen ideas to the Hem/Onc AYA Program staff, Children's Mercy Hospital's Executive Vice President and Co-Chief Operating Officer.

Accomplishments

 

  • Helped design 4 Henson Teen Room

  • Helped design 4 Henson Teen Unit

  • Provide ideas for quarterly Teenapalooza events

  • Helped with creation of Transition Program video (helped write script and several members were in the video)

  • Helped create Fertility Preservation Educational Handouts

  • Provided meal at Ronald McDonald House

  • Several members participated on Get Well Network design teams

  • Several members participated in KIDS KC

  • Supported/in process of supporting many other projects that impact hospital policies, procedures, and literature

How to apply

If you are interested in becoming a member of our Hem/Onc Teen Advisory Council, you are the legal guardian of someone interested, or want to recommend a patient, we ask you to please read our bylaws.

If after reading the bylaws, you feel this is a group you are interested in joining, you may complete our Application and Volunteer Consent forms and send to:

Amanda Woelk
Child Life Manager
Children’s Mercy Hospital
2401 Gillham Rd.
Kansas City, MO 64108
awoelk@cmh.edu

Contact

Amanda Woelk
Child Life Manager
(816) 234-3702 
awoelk@cmh.edu

Amanda Trout
AYA Program Coordinator
(816) 302-6808  
atrout@cmh.edu

Joy Fulbright
AYA Medical Director
(816) 302-6808  
jmfulbright@cmh.edu