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Hem-Onc Teen Advisory Council

The Hem-Onc Teen Advisory Council was started in 2013 as part of the Hem/Onc Adolescent and Young Adult (AYA) Program with the goal of improving care and support for our AYA patients receiving treatment for cancer or blood disorders.

The purpose of the Hem-Onc Teen Advisory Council

 

  • To provide Children's Mercy with a hematology/oncology focused patient advisory board representing various ages, backgrounds and communities.

  • To give an opportunity for a representative group of patients to express concerns, ideas and suggestions.

  • To have Children's Mercy staff listen and support the board.

  • To give teen ideas to the Hem/Onc AYA Program staff, Children's Mercy Hospital's Executive Vice President and Co-Chief Operating Officer.

Accomplishments

 

  • Helped design 4 Henson Teen Room

  • Helped design 4 Henson Teen Unit

  • Provide ideas for quarterly Teenapalooza events

  • Helped with creation of Transition Program video (helped write script and several members were in the video)

  • Helped create Fertility Preservation Educational Handouts

  • Provided meal at Ronald McDonald House

  • Several members participated on Get Well Network design teams

  • Several members participated in KIDS KC

  • Supported/in process of supporting many other projects that impact hospital policies, procedures, and literature

How to apply

If you are interested in becoming a member of our Hem/Onc Teen Advisory Council, you are the legal guardian of someone interested, or want to recommend a patient, we ask you to please read our bylaws.

If after reading the bylaws, you feel this is a group you are interested in joining, you may complete our Application and Volunteer Consent forms and send to:

Amanda Woelk, Child Life Manager
Children’s Mercy Hospital
2401 Gillham Rd.
Kansas City, MO 64108
awoelk@cmh.edu

Bylaws

 

Membership

 

  • Members are 13-21 years old and currently patients in the Division of Hematology/Oncology/BMT.

  • The board consists of a minimum of four members.

  • Meeting facilitators include the AYA Program Coordinator, AYA Medical Director, and Child Life Manager.

  • Members should not miss more than 60% of meetings due to unexcused absences.

  • Members display mutually respectful behaviors at all times.

  • Members will maintain good attendance and good effort at school.

Meetings

 

  • The board meets once per month on the 2nd Monday evening of each month. There may be additional meetings/changes in meeting dates/times due to special events.

  • The meetings will be an hour in length at a predetermined location.

  • The meeting agenda and minutes will be distributed to all appropriate individuals.

Parental involvement 

 

  • Parents support their teen’s involvement in the Hem/Onc Teen Board.

  • The parent(s) assumes responsibility for transportation to the meetings/activities. 

  • A parent authorization form allowing pictures of the board members will be signed. These pictures may be used for various projects or publicity.

Member recommendations


Member recommendations are received from Children’s Mercy personnel. All recommendations must go through the HOT application process. Qualities to consider when making recommendations are:

  • Amount and type of hospital or clinic experience

  • The teen’s willingness to express feelings, ask questions, and share ideas.

  • The parent’s commitment to support their teen in this group and to provide transportation for their teen to and from the meetings.

  • The teen’s ability to maintain interest in monthly meetings.

  • The teen has good attendance and makes good effort at school.