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With a vision to inspire children with disabilities to live extraordinary lives, Children’s Mercy Muscle and Nerve Clinic provides evaluations and holistic care of children with neuromuscular diseases. 

All the specialists your child needs in one visit

Neuromuscular diseases can cause weakness and can affect the heart, lungs and bones. Because these diseases affect different areas of the body, your child will need to be followed by different specialists. 

In the Muscle and Nerve Clinic, your child will see multiple specialists at one visit, on one day, at one time. This approach helps create efficient and effective care and communication between you and your child’s doctors. Our goal is to accommodate your child’s needs in fewer visits so they miss less school than if they saw all the specialists separately.

Specialists in the Muscle and Nerve Clinic:

We can also coordinate your child’s appointment to include orthotics/bracing, X-rays, endocrinology and the Bone and Mineral Health Clinic on the same day or next day if you are traveling long distances.

Advancing care

Certified Duchenne Care Center

Children's Mercy is a recognized Certified Duchenne Care Center by the Parent Project Muscular Dystrophy (PPMD), which means that we provide care based on established national guidelines and standards. We offer Exon Skipping therapy. This reflects our team’s commitment to the care of the Duchenne Muscular Dystrophy patients and their families.

SMA Treatment Center

Children's Mercy is a Cure SMA treatment site for the medications Spinraza and Zolgensma. These two medications are used to treat Spinal Muscular Atrophy (SMA). We have a dedicated SMA Coordinator to ensure comprehensive and timely care with regards to these medications.


We collaborate with the MDA, University of Kansas Medical Center, Parent Project Muscular Dystrophy and CureSMA to connect patients to available research opportunities. Clinical trials can also be found here.

Diagnostic Testing:

  • Genetic Testing
  • Muscle MRI
  • Muscle Ultrasound
  • Muscle Biopsy
  • Spine X-Ray 

Health Maintenance Testing:

  • Facioscapulohumeral Muscular Dystrophy (FSH or FSHD)
  • Pulmonary Function Tests
  • Echocardiogram & EKG
  • Cardiac MRI
  • DEXA Scan and Vitamin D
  • Endocrine Function


  • Becker Muscular Dystrophy (BMD)
  • Duchenne Muscular Dystrophy (DMD)
  • Spinal Muscular Atrophy (SMA)
  • Charcot-Marie-Tooth Disease (CMT)
  • Congenital Myotonic Dystrophy
  • Congenital Myopathies (Bethlam and Ulrich)
  • Facioscapulohumeral Muscular Dystrophy (FSH or FSHD)
  • Friedreich’s Ataxia (FA)
  • Limb-Girdle Muscular Dystrophy (LGMD)
  • Metabolic Myopathies
  • Mitochondrial Myopathies
  • Pompe Disease (Acid Maltase Deficiency)

Drugs We Prescribe

  • SMA:  Zolgensma, Spinraza, Evrysdi (Link this to SMA treatment section.)
  • DMD therapies: Steroids (Agamree, Emflaza, Prednisone), Exon-Skipping Drugs (Amondys, Exondys, Vyondys, Viltepso), Microdystrophin gene therapy (Elevidys)

What to expect during your appointment

Since your child will be seen by multiple providers, this appointment can last around 3-4 hours.

Please bring the following to your child's appointment:

  • Any bracing or equipment that your child is currently using
  • Snacks and activities for your child
  • Any outside medical records that could be helpful

Your child will be scheduled to complete pulmonary function test and cardiac imaging prior to their muscle nerve clinic appointment.


We've put together resources that our patients and their families have found most valuable. These resources provide useful information specific to neuromuscular diseases, along with information on community assistance, food services and mental health.

Clinic location and contact information

The Muscle and Nerve Clinic is located at Children’s Mercy Adele Hall in Pink Zone, first floor.

Clinic Coordinator: Heidi Lockridge, RN, BSN 816-302-3387

SMA Care Team Coordinator: Anna Mueller, RN, BSN ,CRCC - (816) 302-3386

Weekend and After Hours: (816) 234-3000

Rehabilitation Medicine Clinic: (816) 234-3970