What to expect
Location and directions
Our Spinal Differences Clinic is held in the Rehabilitation/Special Care Clinic at the Children’s Mercy Adele Hall Campus. Visits to the multidisciplinary clinic are about 4 hours in length. You are welcome to bring food and drinks for your family while you are in the clinic room. The cafeteria is also just below our clinic if you need a snack during clinic.
When you check in to the clinic, your child and family will be placed in an exam room and will stay in the same room for the entire visit. There will be a Clinic Schedule that has been prepared for your child’s visit with all the providers highlighted that you are scheduled to see. This sheet is taped to the cabinet so that you know where you are in your clinic visit.
Please bring ALL equipment (braces, wheelchair, walker, and stander) to the visit. It is especially important to have the braces, wheelchair and walker as these items may need to be modified.
We have staff from Hanger (brace company) and Numotion (wheelchair vendor) at each clinic and adjustments can often be completed during your visit. Valet parking and wagons are available at the main entrance to help you with the transfer from your vehicle to the clinic.
Your child may be asked to walk in the hall with their braces so it is helpful to bring or wear shorts that allow a better view of the knees and feet and keep your child comfortable.
Prepare ahead of time
Please make a list of questions and concerns that you have before the visit. We want to make this visit very productive for you. Your visit is really driven by your concerns.
You will receive a phone call from one of our nurse coordinators a couple weeks prior to the clinic to discuss concerns that you may have, but note any other issues that arise after this call.
Pre-visit tests and studies
Your child’s doctor will often request certain tests and studies to be done prior to coming to the clinic. These tests, such as Urodynamics Studies, help your care team provide you with answers to your questions and plan the best course of treatment for your child.
For families who live close to Kansas City, we want to schedule these studies a week or two before the visit so that information is available to the staff to give you results the day of visit.
For families coming from a distance, we try to schedule these studies the day before your visit. We will help you arrange for a stay at the Ronald McDonald House just across the street from the hospital if that works for you.
Please respond to the nurse from the Kidney Center when she calls to schedule Urodynamics Studies. It is very helpful for the Urologist to have this study in front of them to help plan your child’s care.
If you are not able to keep your child’s appointment, please call as far in advance as possible. These appointments are scheduled for 3-4 hours and our schedule is filled out several months in advance so it is not easy to reschedule for a week or two later. We often can move an appointment if we know in advance.
We look forward to making your clinic evaluation a productive and positive experience.