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Spinal Differences Patient Family Advisory Council

Mission


The Spinal Differences Patient Family Advisory Council will work in partnership with the Children’s Mercy staff members to advocate on behalf of families for the best quality of care. The council will serve as a resource for parents or guardians to provide input on policies and procedures, enhance communication, and expand education for patients and families in both inpatient and outpatient settings.

Application

If you have read through the bylaws and feel like this committee would be a good fit for you, please fill out an application.


Bylaws


Application process


In order to achieve a diverse representation and work towards our mission the Council has created an application process for potential members. The Patient Family Advisory Council will review all new applications at monthly meetings. Council will then vote to fill available seats.

Size


The council will strive for membership of no less than 10 and no more than 21 patient/family members at any given time. Children’s Mercy staff are non-voting members.

Terms


Commit to serve on the Spinal Differences Patient Family Advisory Council for a minimum of 2 years. Terms begin at approval of application. Members will consist of patients and their family members who receive services at Children’s Mercy.

Attendance


Consistent and active attendance is vital to the purpose of the Council. Each member is strongly encouraged to attend and participate in all PFAC meetings and conference calls. Council members are required to attend 50% of the meetings within a 12 month period either in-person or phone/video conference. It will be assumed all members will be in attendance. If a member cannot attend, out of courtesy for the group he/she will notify the staff facilitator as soon as possible via email. Meetings are subject to be canceled or rescheduled if majority of members are unavailable. A quorum of 50% either in person or electronically (or a combination) is required to vote on issues. All decisions that require a vote need a simple majority to pass.

Officer elections


Council members can nominate themselves or other members for leadership roles. Elections will be held every June as terms will be limited to a year with a one-time renewal option.

Chair 


Organize and lead meetings, including defining agenda and action items. The Chair will be the PFAC representative at official meetings when needed.

Secretary


Support the Chair in his/her duties including serving as acting Chair during the Chair’s absence, record minutes, track the member volunteer hours associated with this PFAC and submit them to staff facilitator.

Member expectations


The council will serve as an action oriented group, with expectations of time investment outside of the meetings. However, it is important to note that this council will not meet the needs and capacity of a Support group.

Members will:

  • Serve as an advisory resource to administration and staff.

  • Advocate for education, and clinical programs to improve the quality and accessibility of care.

  • Assist in the development and review of educational materials.

  • Respectfully listen and tactfully discuss ideas, issues and concerns.

  • Respect the privacy and confidentiality of council members, their families and all staff.

  • Actively participate with expectations of time investment outside of the meetings.


Any articles of these By-laws may be added, deleted, or amended by majority of the vote of at least 2/3 of the council.