My husband, Andre and I welcomed our son, Logan during the middle of a pandemic at 36 weeks. At 22 weeks, Logan was diagnosed with Spina Bifida, myelomeningocele, the most severe form. Along with Hydrocephalus and Chiari Malformation. At 25 weeks we had in-utero surgery to repair the opening in his back. After he was born, he had another repair surgery and remained in the NICU for two weeks. Few years have gone by, and he has had other surgeries such as a shunt placement (5mo) and multiple feet surgeries, with a few more surgeries in the near future. Given these complex diagnoses, we are extremely grateful for all the resources and care that Childrens Mercy has provided for our family.
I became a member of the Fetal Health Center PFAC to have an impact on future families that may be starting to walk the same journey we went through. I know first-hand the emotional rollercoaster a fetal diagnosis can be and all that comes along with it throughout the pregnancy and beyond. My hope is to give back, and advocate for the fetal health center, along with Childrens Mercy for all they have done. To provide insight, support, guidance, and a shoulder to cry on for families that may be going through the hardest time of their life. There is hope and Childrens Mercy led the way.