Networks, Resources and
These sites will help you find many metro, state, and national
resources for health information, financial assistance, counseling,
clothing, food, transportation, and other support.
The first place to get information about your child's specific
condition is from your doctors. You also can find health
information from hospital libraries and public libraries near you.
Medical librarians can help you find books, videos, websites,
literature, support groups, and other resources to answer your
Librarians can help you find books, videos, websites, support
groups, and other resources to answer your questions. Anyone living
in the Kansas City metro area may register for a library card to
access books and online resources!
Books and Websites
See our list of books that are written especially for you and your
child. If you are looking for medical information to help you,
makes sure to check these websites for information you can
Community Support Organizations
Check out these support organizations in the greater Kansas City
area to help you and your family's needs. You can browse their
websites to learn more about them, and you can contact them by
Camps for Kids
Summer camps for children are a great way for them to have a fun,
distinct social experience.. There are special camps to help
support children with illnesses, grieving, and other situations
that life brings. You can browse these websites to learn more about
these supportive camps.
School is a very important part of a child's life as preparation
for the future. You should know your child's rights if your child
has special needs. These resources will allow you to learn more
about your child's rights to the best possible education.
|Accessible Homes and Assistive Technology
These resources will help you learn more about home modifications
and technology to reduce mobility barriers. People with
disabilities deserve a confortable home to fit their mobility needs
and access to technology to use for mobility and communication in
their everyday lives.
These resources will help you learn more about vehicle
modifications and vehicle options to reduce transportation
barriers. People with disabilities have special transportation
needs and deserve the utmost confort and safety when using
Recreation Therapy, Pet Therapy, and Service Animals
The therapeutic touch of pets and volunteers for people bound by
their illness is special for all pediatric patients. Pets visit
people in local hospitals, shelters, treatment centers and nursing
homes in the Kansas City metropolitan area. Recreation therapy can
make the child's experience a social one and a meaningful one.
Traveling and Safety
Children of all ages have special safety needs while traveling in a
car, on a plane, or when going on a vacation. These resources will
show you what to do or who to talk to about staying safe.
Caring for a chronically ill child can be expensive! Get to know
your health insurance plan and what it covers. To contest, or
argue, a denial of claim, refer to your insurance plan. Ask your
doctor for a letter that explains why the tests, procedures, or
other medical care were needed. Check with your employer's Human
Resources department or bebefit's Specialist for help with
If you belong to a religious or spiritual community, the people in
it can be a great support to you. Many faith-based organizations
are also able to fund and staff regular programs and services for
their members or even for the general community, regardless of
faith. Allow your community to help you when you need it, knowing
that one day you can "pay it forward" by helping others.
The resources listed below may help you with decisions you may make
if your child if approaching the end of life. Hospital chaplains,
palliative care teams, social workers, and hospice personnel can
help you think through these issues and express your wishes to the
other people involved. Discuss the option of hospice care with your
healthcare team. Hospice care can offer the child and the family
emotional support, comfort measures, and care. Kansas City has
hospice programs for young adults, children, and infants.