Resources for Families

Below are links to educational information on congenital heart defects and heart disease:

• American Heart Association (AHA)
  

• National Institutes of Health

• Centers for Disease Control and Prevention
  

• Cove Point Foundation: Educational Resources in English and Spanish

• American Academy of Pediatrics (AAP)

• Congenital Heart Public Health Consortium (CHPHC)

Below are links to information on heart surgery outcomes, public reporting for individual hospitals and quality improvement for babies with hypoplastic left heart syndrome (HLHS):

• Children's Mercy Cardiovascular Surgery Outcomes

• The Society of Thoracic Surgeons (STS)

• National Pediatric Cardiology Quality Improvements Collaborative (NPC-QIC)

Below are links to Children's Mercy clinics and programs that provide care for children with extra medical needs and support for their families:

• Heart Center

• CHAMP

• Thrive Program

• Cardiac Neurodevelopmental Clinic

• Trisomy 18

• 22q11.2 Clinic

• Turners Syndrome Clinic

• Genetics Clinic

• Special Care Delivery

• Beacon Program and Clinic