Michele Shusterman is the President and Founder of CP NOW, a nonprofit supporting the CP community, and the creator of the website CP Daily Living.
Michele is passionate about sharing her personal experience raising her daughter Lilly, who has CP and acts as a liaison to the clinical and research communities. She has contributed to two books on Cerebral Palsy and co-authored several peer reviewed journal articles. As a parent advocate and community expert, she has participated in two NIH conferences, one focused on establishing national research priorities for CP and another about determining exercise guidelines for wheelchair users.
In 2016, Michele received the Making a Difference Award from the American Academy for Cerebral Palsy and Development Medicine (AACPDM) after developing the CP Tool Kit, a supportive diagnosis resource guide for parents and caregivers. Both the CP Tool Kit and CP NOW’s Wellbeing for Parents and Caregivers, can be downloaded through their website: cpnowfoundation.org
In 2017, CP NOW was awarded the Eugene Washington PCORI engagement award. Those funds led to a collaboration between CP NOW and members of the CP community to establish and publish research priorities for federal agencies, researchers and private groups. This past year CP NOW funded their first research study, an intensive camp for children with CP that tested an intensive upper and lower body therapy called HABIT-ILE.
Michele is a graduate of Barnard College and is married to Dr. Blake Shusterman, a nephrologist. They live in Greenville, SC with their daughter Lilly, 12.