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Angelman Syndrome Patient Family Advisory Council

Mission   PFAC Angelman Logo The Angelman Syndrome Clinic Patient Family Advisory Council will work in partnership with Children’s Mercy staff members to advocate on behalf of families for the best quality...

August

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Eating Disorders: Medical Workup and Stabilization Pathway

Clinical Pathways promote evidence-based, safe, and high-value care for patients by providing clinical recommendations and standard processes. They are developed by multidisciplinary committees of subject...

Bylaws

Membership  Members will consist of parents and caregivers of a child who has received care in the Angelman Syndrome Clinic.  All members will become official Children’s Mercy volunteers and must...

Autism Spectrum Disorder: Setting up for back-to-school success

Starting a new school year is exciting but can also be a bit frightening. While this is true for all children, it can be heightened for kids with Autism Spectrum Disorder (ASD). Predictability and routine...

Visual Diagnosis: Pleural Fluid

A 14-year-old teenage boy presented with a one-day history of right ear pain and neck pain and stiffness.

Link Newsletter - July 2023

Our July issue features the latest news and updates on pediatric care from Children's Mercy clinicians. We want to hear from you! Do you have ideas, questions or suggestions for future articles in The...

Febrile Infant: Ill Appearing Infant Workup and Treatment

Ill appearing infants require full evaluation for serious neonatal infections. We recommend obtaining the following studies and initiating empiric treatment: Diagnostic evaluation: CBC with differential, C...

Febrile Infant: HSV Studies

HSV blood PCR HSV CSF PCR HSV cutaneous lesions PCR – unroof one or more vesicular lesions and obtain vesicular fluid on an appropriate swab HSV surface swabs PCR – swab conjunctivae, nasopharynx, mouth...

Outbreaks, Alerts and Hot Topics: Foodborne Illness

Summer is the peak season for foodborne illness, which can especially impact vulnerable populations like children.

Vaccine Update: Chikungunya Vaccine Trials

Recent reports show promising data on a phase 3 trial for a single-injection live-attenuated vaccine candidate to combat chikungunya virus.

Febrile Infant: Patient Inclusion and Exclusion

Inclusion criteria: “Term”: Estimated gestational age (EGA) > 37 weeks. “Healthy”: Patients with the following conditions are excluded from this guideline: Preterm infants (< 37 weeks gestation).

Febrile Infant: HSV Risk

HSV risk factors: Ill appearance (off guideline) Prematurity: <37 weeks EGA - off guideline Maternal history of genital HSV lesions  Maternal fever from 48 hours before to 48 hours after delivery...

Less frustration, more communication: How to use baby sign language with your child

As parents, we’ve all been there – your baby is upset and screaming, and you just want to yell, “Tell me what you want!” Adding a few basic sign language words to your child’s vocabulary can help ease this...

Food Guidelines

Do not discuss calories with patient Only parents or staff to choose food off meal plan No modifications to meal plan(s) - unless approved by the eating disorder team No outside food or drinks Remove all...

Admission Criteria

Eating Disorders Admission Criteria (The following evidence based criteria is used in medical decision making when considering admission to CMKC) Heart Rate/EKG < 50 bpm while awake, < 45 bpm while...

Dr. Jordan Jones Receives Funding to Study Patient Understanding of Ehlers Danlos Syndrome Diagnosis, Develop Educational Tool

Dr. Jones’ project, “Patient Understanding of Disease and Clinical Needs After Diagnosis of Ehlers Danlos Syndrome,” aims to gain more knowledge about patients’ and families’ understanding of Ehlers Danlos...

Dr. Daniel Forsha Receives Funding to Study Skeletal Muscle System in Teens with Single Ventricle Circulation

Dr. Forsha’s study, “A comprehensive and non-invasive assessment of skeletal muscle in adolescents with single ventricle circulation,” focuses on adolescents who have had the Fontan procedure (the third of...

Debilitating Pain: Lauren’s Story

Meet Lauren Lauren is a 17-year-old who just graduated from Central High School in Saint Joseph, Mo., with a very specific athletic goal:    “After high school, I want to be a Division I baton...