Planning for your child’s needs
The Palliative Care Team acts as an extra layer of support during the stress and intensity of caring for a child with complex medical needs. We can help develop a comprehensive care plan that centers around your child and your family’s needs and goals. Whether you choose to continue disease-directed treatments or decide to focus on comfort care, we will be with you every step of the way.
In some cases, this means modifying activities and experiences to focus on what’s most meaningful to your child. There are many creative ways kids can celebrate holidays and milestones even as they face health challenges or extended hospitalizations.
In other cases, this means planning for end-of-life care and what your family’s priorities are during that time. When your child has a life-limiting condition, we can talk with you about how to make the most of your time together, create meaningful memories and experiences, and celebrate the uniqueness and beauty of your child with your family and community.
And sometimes, kids surprise us by knocking down every obstacle that comes their way and doing better than anyone could have expected. We are always happy to see families who “graduate” from the Palliative Care Team’s services and are ready to manage their child’s care on their own, outside of the hospital.