Rare Neurological Disease
Rare Neurological Disease
Children’s Mercy is here to treat children with rare neurological diseases. Our highly trained clinician focus on multi-disciplinary care for many rare diseases, making Children’s Mercy the best place in the region for rare disease diagnosis, treatment and research.
We know it can be lonely and frustrating to have a child with an undiagnosed condition. Often families must be their own advocates during the long journey to find a diagnosis. Our care and services are informed by those who understand rare disease best – our patients and families. Read about our Rare Patient Family Advisory Council.
Pediatric neurologists experienced in rare disease
Several of our neurology specialty clinics focus on care for children who have rare diseases.
The Angelman Syndrome Clinic at Children’s Mercy is one-of-a-kind in the region and designed to be a medical home for children with Angelman syndrome and their families.
Children’s Mercy has a cross-disciplinary team of specialists who work together to address the full range of issues affecting patients with Dravet Syndrome.
In this multidisciplinary clinic, doctors in several different specialties work together to address your child's medical needs in a single visit.