The Children’s Mercy Comprehensive Tuberous Sclerosis and Neurofibromatosis Clinic is a nationally recognized clinic that provides comprehensive multidisciplinary care for children with neurocutaneous disorders such as tuberous sclerosis and neurofibromatosis. In this multidisciplinary clinic, specialists in dermatology, genetics, hemato-oncology, neurology, neurosurgery, neuropsychology, nephrology, social work and neuro-radiology work together to address each child's medical needs in a single visit. We work to coordinate multiple clinic visits/testing for the same day and also refer your child to appropriate specialties based on their evaluation.
Each health care provider strongly advocates for the highest level of care for each Tuberous Sclerosis and Neurofibromatosis patient. The health care providers from all subspecialties will meet annually to review new treatments, clinical trials and research for those with Tuberous Sclerosis and Neurofibromatosis. The health care providers participate and are encouraged to participate in clinical research as well as providing community and patient education.
Accredited by the Tuberous Sclerosis Alliance
The clinic has received the Tuberous Sclerosis Alliance Accreditation and we have recently applied to be a NFCN (Neurofibromatosis Clinic Network) recognized site. We continue to strive to provide the best possible care possible based on standard practices and guidelines.