My husband, Chris, and I are the parents of three children, West, Miller and Wyatt. At four months, our oldest son became very ill. West was diagnosed by the Liver Care Center with a rare disease. The urgency and multidisciplinary approach provided by the team at Children's Mercy allowed West to make a full recovery. Five years later, little brother, Wyatt, was born with the same genetic recessive condition.
Children's Mercy plays an important role in my sons living their best, healthiest life. I joined the FAB to give back to a hospital that has given my family so much and also to provide a louder voice for all rare disease families.