Miller’s Story: AVSD and Care at Children’s Mercy

Meet Miller

During pregnancy, Mischia Kirkpatrick and her husband learned that their son, Miller, had atrioventricular septal defect (AVSD). “He basically had a big hole in the middle of his heart,” Mischia shared, remembering the moment that changed everything for their growing family.

From the day of his diagnosis, the Children’s Mercy Elizabeth J. Ferrell Fetal Health Center became their anchor. “I never felt like we were left alone,” Mischia said. “They were in constant communication with us from the moment we found out.” Every conversation, every update, every check-in reminded them that they had a team walking beside them. “They truly prioritize parents’ concerns and stress levels and try to minimize them however they can.”

Weekly and biweekly sonograms, regular check-ins, and a coordinated team of specialists helped the family feel supported at every turn. “It brought so much comfort that the right people were there,” Mischia recalled. “We could enjoy the delivery and welcome our son knowing that the surgery area was connected to our room.”

Miller’s first months were tough. His heart and lungs worked overtime to compensate for the AVSD. They had to feed him every three hours, around the clock and he would eat less than half of what a typical baby eats because he would get so tired. The family’s routine centered on frequent weight checks and hospital visits to ensure Miller was stable enough for surgery. “Our lives revolved around getting his weight up,” Mischia said. “He couldn’t do any normal things that we wanted him to do because it just exhausted him.”

At 8 months old, Miller had open-heart surgery to address his condition. The operation was considered urgent because his body was struggling to cope. After surgery, Miller’s health improved quickly, and he was able to eat and gain weight normally.

While reflecting on the surgery, Mischia said that small gestures from the staff made a difference. For example, one nurse drew on the bandages during the surgery. “They were customized for each child. That just resonated with me so much… someone went above and beyond.” Mischia also described how the hospital supported the whole family, including Miller’s older brother, with sibling resources and a playground to make hospital visits less stressful.

Today, Miller is healthy and has no restrictions. The family continues regular checkups. Mischia now volunteers to support other families at the hospital. Her advice: “You truly couldn’t be in better hands at Children’s Mercy… those doctors and nurses will advocate for your child too. Ask questions, speak up if you need something, and know that you’ll be comforted in a time when you probably feel like nothing’s going to comfort you.”

Learn more about the Elizabeth J. Ferrell Fetal Health Center at Children's Mercy