The Children’s Mercy Cystic Fibrosis Care Center Team provides expert, family-centered care to infants, children and adolescents living with cystic fibrosis. Our care team includes medical providers, nurses, respiratory therapists, social workers, dietitians and pharmacists who all work together to coordinate care for your child.
The Cystic Fibrosis (CF) Care Center is fully accredited by the Cystic Fibrosis Foundation. More than 260 families from across the Midwest come to Children’s Mercy each year to receive specialized care for their child.
From diagnosing your baby to helping your young adult transition to managing their own care, the Children’s Mercy CF team will be with you every step of the way.
Understanding Cystic Fibrosis
Cystic fibrosis (CF) is a genetic disease that causes frequent lung infections. Over time, the disease becomes progressively worse and makes it difficult to breathe.
The genetic mutations in people with CF cause a protein called CFTR to stop working correctly. Because of this, cells in the body can’t remove the chloride from the cells correctly, which causes thickening of the mucus in the lungs, pancreas, liver, and other organs.
This thick, sticky mucus causes a number of health issues, including frequent infections, growth problems, liver disease, and fertility concerns.
Symptoms of cystic fibrosis
People with CF can have a variety of symptoms, including:
- Extremely salty-tasting skin
- Coughing and excessive phlegm
- Frequent lung infections such as pneumonia or bronchitis
- Difficulty breathing, including shortness of breath and wheezing
- Slow growth and trouble gaining weight, even if well-nourished
- Trouble with bowel movements, often characterized by frequent greasy, bulky stools
Find out more about cystic fibrosis
To help you better understand cystic fibrosis, including symptoms, treatments and support for people living with CF, we recommend that you explore the Cystic Fibrosis Foundation's website.