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Down Syndrome Program

A teen visits the Children's Mercy Down Syndrome Clinic.
 

The Down Syndrome Program at Children’s Mercy is a consultative service that offers specialized services to children with Down syndrome and their families.

Established in 1989 by a parent who had a child with Down syndrome, our clinic has been in existence for 30 years and during that time has developed a strong multidisciplinary team with valuable expertise in caring for children and adolescents with Down syndrome.

Led by medical director Nasreen Talib, MD, MPH, our experienced team includes professionals from Pediatrics, Adolescent Medicine, Behavior Psychology, Audiology, Genetic Counseling, Nutrition, Occupational Therapy, Speech Therapy and Social work and our Advocate adult with Down syndrome.

Our team works together to collaboratively review the unique needs of each child and improve the quality of life for them and their family.

What is Down syndrome?


Down syndrome is one of the most common genetic conditions. Individuals with Down syndrome have an extra 21st chromosome in all or some of their cells. This additional genetic material affects the course of development, leading to developmental delays, intellectual disabilities and increased risk of certain medical issues.

What to expect at your visit to the Down Syndrome Clinic


At this comprehensive visit, the Down Syndrome Clinic team hopes to screen for the common conditions seen in children with Down syndrome. This will provide early diagnosis and early intervention with the ultimate goal to facilitate that the child is able to function to the best of their ability.

The Down Syndrome Clinic visit typically lasts for almost 4 hours. Each child is seen by members of the multidisciplinary team. The team consists of medical Professionals from Pediatrics, Adolescent Medicine, Behavior Psychology, Audiology, Genetic Counseling, Nutrition, Occupational Therapy, Speech Therapy and Social work.

You will also get to meet our advocate for the Down Syndrome Clinic, Karissa, an adult with Down syndrome. She works in the Down Syndrome Clinic.

Down Syndrome Program Menu