Children's Mercy provides comprehensive treatment for children with hemophilia and other bleeding disorders. Our team provides a full range of diagnostic, treatment, and preventive options for hemophilia, von Willebrand disease, and other bleeding disorders. Hemophilia is a rare disorder in which the blood does not clot normally. It is usually inherited and is most common in males.
A designated Hemophilia Treatment Center
The Hemophilia Treatment Center (HTC) at Children's Mercy is a federally designated HTC and part of a national network of centers providing the latest treatment for patients. We provide on-call services 24 hours a day for emergencies and emergency consultations.
Children receive dedicated care and support from an expert clinical team that includes physicians, nurses, nurse practitioners, social workers, research specialists, and physical therapists. Patients benefit from a personalized approach to care that focuses on their unique needs. We also provide comprehensive laboratory monitoring and follow-up.
Being close to the hemophilia community is important. We collaborate with the Centers for Disease Control and Prevention, the National Hemophilia Foundation, the Midwest Hemophilia Association and other agencies involved in the bleeding disorders community.
Helping families with hemophilia
We look for ways to support your child at all stages of life with hemophilia. We offer events including camp, a young women's clinic, Saturday clinics, and regional outreach clinics. As children become young adults we work to help them begin managing their own care and ensure a smooth transition to adult care through our partnership with Truman Medical Center.
We also have a 340B Factor Program, which lowers the cost of factor for eligible hemophilia patients.