Feeling much better!
Already, Taylor is feeling much better, enjoying activities she had given up before surgery, like babysitting in the church nursery and her appetite has returned. She was even up for a shopping trip a few days after surgery, something she hasn’t felt like doing for a long, long time.
“Mom took me shopping with my Christmas gift cards,” Taylor said. “We went to four stores and I shopped for two hours. I felt this burst of energy. It was great!”
Taylor will continue as a patient in the Children’s Mercy Endometriosis Care program where Dr. Strickland can monitor her symptoms and treatment until she reaches age 18.
Going forward, Taylor may take advantage of some of the other services the Endometriosis Care program offers, such as physical and occupational therapy or pain management techniques, like biofeedback.
“At her post-op appointment, Dr. Strickland validated things for Taylor, encouraged her to take this disease seriously and not to worry about whether anyone else understands it—to do what she needs to do to take care of herself,” Amber said.
Taylor agreed that being a teen with endometriosis isn’t easy. “It’s hard to tell my friends that I have this disease and that sometimes I don’t feel like doing anything,” Taylor added. “I look fine from the outside, but I can’t just take a couple of ibuprofen and feel better. It’s not easy to explain.”
“Taylor’s case was pretty typical of the patients we see,” Dr. Strickland added. “Our goal is that early diagnosis can improve functional outcomes in teens and reduce the disability that many girls with endometriosis experience.”
Amber wants to encourage other parents to be proactive in finding care for their teen. According to the Endometriosis Association, it takes an average of over nine years to receive a correct diagnosis and treatment. This means that much of a child’s youth may be spent suffering unexplained, often crippling pain.1
“A lot of medical professionals don’t think someone Taylor’s age could have such severe endometriosis,” Amber said. “Taylor was lucky we found Dr. Strickland.
“After her surgery, it was a huge relief to know what she has is real, that there is a name for it, and that we have a plan to manage it,” Amber said. “If you have a gut feeling that something isn’t right with your child, follow your instincts.”
Taylor agreed. “I’m glad that we found out what I have, and that Dr. Strickland could treat it. To say that I feel good sounds like such a small word, but it’s a very big deal for me.”
For more information about the Children’s Mercy Endometriosis Care program, call (816) 234-4151.