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Navigating Food Allergies From Diagnosis to Adulthood

The food allergy team at Children's Mercy has created a roadmap to help kids, caregivers, schools and friends navigate food allergies through the years. 

Newly Diagnosed

  • Fill the epinephrine prescription ASAP and ALWAYS carry 2 with you.
  • Order a medical alert identification.
  • Read every label, every time.
  • Learn all the names for your allergen.
  • Recognize the signs and symptoms of anaphylaxis.
  • Know how to administer epinephrine and call 9-1-1.
  • Find support through local support groups, national organizations and friends.
  • When eating out, check the restaurant out ahead of time to meet needs. Upon arrival, notify server/manager/chef of allergens.
  • Learn how to avoid cross contamination and cross contact.
  • Follow the “no label=no eat” rule.
  • Educate family and friends about food allergies and how they can keep everyone safe.
  • Train all potential caregivers on how to administer epinephrine and the food allergy action plan.
  • Check out food allergy cookbooks or online recipes.
  • Always carry snacks and hand wipes with you. Hand sanitizer does not remove allergens.
  • Teach siblings how to handle food allergies.
Toddler eating banana being fed by adult

Toddlers

  • Teach your child to say “allergen.”
  • Make sure your child can visually recognize allergens.
  • Teach your child to ALWAYS wash their hands before eating.
  • Wash toys if they have been in an unsafe environment or on the floor.
  • Educate babysitters about signs and symptoms of anaphylaxis. Train them on how to administer epinephrine and the food allergy action plan.
  • Ensure daycare/preschool have current epinephrine and food allergy action plan.

School Age

  • Schedule a meeting with school administration to discuss 504 or Individual Health Plan.
  • Meet with teacher and school nurse.
  • Discuss lunch protocols.
  • Discuss how the school handles parties/celebrations.
  • Make sure your child can read their allergens.
  • Teach your child and their siblings how to administer epinephrine and review regularly.
  • When you think it is appropriate for your child, let them practice with epinephrine trainer.
  • Ensure nurse/office have current epinephrine and food allergy action plan.
Teen girl laughing with friends

Teen Years

  • Train your friends how to use epinephrine.
  • Know your 504 plan and rights at school. Don’t be afraid to stand up for yourself.
  • Don’t be afraid to ask for help.
  • Have conversations about a responsible, safe allergy lifestyle.
  • Know what your “date” and friends have eaten to prevent cross contact.
  • Check medication expiration dates.
  • Start the conversation on transition of medical care to adulthood.