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End of Life Cultural, Legal & Ethical Aspects of Care

CM policies to refer to: Disagreement Resolution Surrounding Redirection of Care Moral and Religious Objections to Care AAP Policy Statements for End of Life: Forgoing Life-Sustaining Medical Treatment...

Azadeh Wickham Receives PCS Research Grant to Study Clean Intermittent Catheterization Determinants and Adherence

The aim of this study is to describe the rate of clean intermittent catheterization adherence and correlate determinants to clean intermittent catheterization adherence in caregivers of pediatric patients...

Abstract: Comparative Performance of a Recurrent Neural Network (RNN) and Logistic Regression (LR) Model to Predict Diabetic Ketoacidosis (DKA) among Youth Postdiagnosis with Type 1 Diabetes (T1D)

David D. Williams, Sarina Dass, Jonathon Bass, Susana R. Patton, Sanjeev N. Mehta, Ryan McDonough, Colin Mullaney, Leonard Davolio, Mark A. Clements. Preventing dangerous and costly episodes of DKA is a...

Abstract: Towards a Diabetes Rapid Learning Lab: Creation of a “D-Data Dock” to Integrate Diverse Data Sources and Facilitate Rapid Insights from the Deployment of Novel Interventions

B. Lockee1, C. Vandervelden1, M. Barnes1, S. Patton2, R. McDonough1, M. Clements1 1Children's Mercy Kansas City, Endocrinology, Kansas City, United States, 2Nemours Children's Health, Center for...

Abstract: Towards Risk-based Management of Type 1 Diabetes (T1D): Developing a Population Health Dashboard Based on Performing Diabetes Self-Management Habits

Craig Vandervelden; Brent Lockee; Susana R. Patton; Ryan McDonough; Joyce M Lee; Mark Clements Children's Mercy Hospitals Kansas City, Missouri, USA cavandervedlen@cmh.edu Background/Objectives: Recent...

Abstract: Factors associated with hospitalization in youths and young adults with type 1 diabetes and COVID-19 infection

E. Tallon1, O. Ebekozien2,3, J. Sanchez4, V. Staggs5,6, D. Ferro5, C.-R. Shyu1, M. Clements5 1University of Missouri-Columbia, Institute for Data Science and Informatics, Columbia, USA, 2T1D Exchange...

Abstract: Factors associated with hospitalization in youths and young adults with type 2 diabetes and COVID-19 infection

E. Tallon1, O. Ebekozien2,3, J. Sanchez4, V. Staggs5,6, D. Ferro5, C.-R. Shyu1, M. Clements5 1University of Missouri-Columbia, Institute for Data Science and Informatics, Columbia, USA, 2T1D Exchange...

Abstract: Examining the Glycemia Risk Index (GRI) as a Risk Biomarker for Elevated hemoglobin A1c in Individuals with Type 1 Diabetes (T1D)

B. Lockee1, J. Litwin1, C. Vandervelden1, D. Williams2, M. Barnes1, R. Mcdonough3, S. Patton4, K. Noland1, M. Clements5 1Children’s Mercy Hospital, Endocrinology, Kansas City, United States of America...

Abstract: Impact of the COVID-19 Pandemic on Disengagement from Advanced Diabetes Technologies Among Racial/Ethnic Groups in the US T1D Exchange Quality Improvement Collaborative

S. Carrothers1, B. Lockee1, D. Williams1, E. DeWit1, R. McDonough1, N. Noor2, T. Alonso3, H. Akturk4, D.J. DeSalvo5, M. Kamboj6, L. Jacobsen7, M.L Scott8, A. Mungmode2, O. Ebekozien2, M. Clements1...

Abstract: Understanding facilitators and barriers to clinic-wide implementation of a population-based tool to identify patients with type 1 diabetes (T1D) at high risk for suboptimal glycemic outcomes

Emily L. DeWit1, Katie Noland1, Sophie MacColl1, Franziska Bishop2, Mark Clements1 1Children's Mercy Kansas City, 2Stanford School of Medicine eldewit@cmh.edu Background/Objective: To gain insights...

Abstract: Remedy to Diabetes Distress (R2D2)—Identify the Relationship between HbA1c, Socioeconomic Status (SES), and Diabetes Distress (DD)

Rhiannon Pomerantz, David D. Williams, Hung-Wen Yeh, Mark A. Clements, Susana R. Patton Objective: DD among school-age children with Type 1 Diabetes (T1D) and their parents is associated with suboptimal...

Abstract: Shorter follow-up between diagnosis of type 1 diabetes (T1D) to next encounter associates with improved glycemic outcomes

R. McDonough1,2, S. Tsai1,2, M. Barnes1, C. Vandervelde1, P. Prahalad3, D. Maahs3, S. Patton4, M. Clements1,2 1Children’s Mercy - Kansas City, Kansas City, United States, 2University of Missouri - Kansas...

Abstract: Examining the Glycemia Risk Index and Its Association with Continuous Glucose Monitor (CGM)-Derived Glycemic Risk Categories in Patients with Type 1 Diabetes

J. Litwin1, B. Lockee1, C. Vandervelden1, M. Barnes1, R. Mcdonough2, S. Patton3, D. Williams4, K. Noland1,M. Clements5 1Children’s Mercy Hospital, Endocrinology, Kansas City, United States of America...

Abstract: Risk Factors for Hyperglycemic and Hyperketotic Emergencies in COVID+ Youth with Type 1 Diabetes (T1D)

Sarah Tsai, Erin M. Tallon, Diana Ferro, Erica Zarse, David D. Williams, Chi Ren Shyu, Mark A. Clements Recent studies report increased frequency of hyperglycemic and hyperketotic emergencies in youth with...

Abstract: Utilization of a CGM-based Dashboard to Identify At-Risk Patients with Type 1 Diabetes (T1D)

Katie Noland1; Britaney Spartz1; Emily DeWit1, Mark Clements1; Rachel Dixon1; Jaimie Contreras1; Gayla Kutzli1; Andie Kaminsky1; Katelyn Evans1; Jude El Buri1 1Children's Mercy Kansas City Kansas City...

Abstract: Disengagement from advanced technologies in pediatric type 1 diabetes: implications for glycemic control and DKA risk

D. Ferro1, D. Williams1, N. Karwal1, M. Rodrigues1, C. Mullaney2, L. Skrabonja2, B. Lockee1, E. Dewit1, J. Redel1, M. Clements1, R. McDonough1 1Children's Mercy Hospital, Endocrinology, Kansas City...

Abstract: Predicting 90-Day Change in HBA1C with an “Explainable AI” Machine Learning Model Deployed in Clinic

C. Vandervelden1, B. Lockee1, M. Barnes1, E. Tallon2, D. Williams3, K. Noland1, R. Mcdonough1, S. Patton4, E. Dewit1, M. Clements1 1Children’s Mercy Hospital, Endocrinology, Kansas City, United States of...

Abstract: Time from Type 1 Diabetes (T1D) Diagnosis to Clinic-Connected CGM Data is Improving

R. McDonough1,2, S. Tsai1,2, M. Barnes1, C. Vandervelde1, D. Zaharieva3, A. Addala3, S. Patton4, M. Clements1,2 1Children’s Mercy - Kansas City, Kansas City, United States, 2University of Missouri - Kansas...

End of Life Resources and Support

When a child dies booklet Guides for parents: End of life for your child: Preparing, Part 1 End of life for your child: What to expect, Part 2 Understanding nutritional needs These pathways do not establish...

Abstract: Enhanced Classification of Diabetes Status and Type Using Structured Data from Nationwide U.S. Electronic Health Records: A High-Throughput Approach

Erin M. Tallon, PhD, RN1,2; Grant Scott, PhD2,3; Cintya Schweisberger, DO1; Joseph T. Cernich, MD1; Ryan McDonough, DO1; Camila Manrique-Acevedo, MD4; Mark A. Clements, MD, PhD1; Chi-Ren Shyu...