Skip to main content

Resources for Children with Complex Medical Needs

The team at Children's Mercy Beacon Program has collected a range of resources to help families find extended support within the community. These resources provide useful tips and information about technology, community assistance, food services and mental health.

Flu vaccines and your family.
Preparing your family for emergencies.

Educational/employment supports

Ability KC Therapeutic Preschool
Preschool for children with and without disabilities.

Britain Infant Development Center
(913) 676-2000
Offers baby, toddler and preschool classes and many other programs.

Child Care Aware MO
(800) 200-9017

Child Care Aware KS
(855) 750-3343

Children's Center for the Visually Impaired
(816) 841-2284

Kansas Head Start Association
(785) 856-3132

Mid-America Regional Council (MARC)
(816) 841-3382
Missouri call to enroll in Head Start.

United4Children
1 (800) 467-2322
Has inclusion specialists who can meet your daycare to provide support.

Contact your local school district to enroll in preschool programming.

*See Early Intervention section for additional resources regarding daycare.

Adult Daycare listing in Missouri

Adult Day Supports in Johnson County, KS

Life Unlimited
(816) 678-4280
The “My Day” program is from 9:30 a.m. to 3:30 p.m. at two locations in the Kansas City Northland.

*Contact your Medicaid waiver support coordinator through your local Community Developmental Disability Organization or Kansas City Regional Office for a list of day programs available. For more information about Medicaid waivers, see the Waiver resource section.

Children’s Center for the Visually Impaired
(816) 841-2284
Programs for children birth to six with visual impairments, including multiple disabilities.

Children's Therapeutic Learning Center
(816) 751-7700
Offers home-based education, therapeutic preschool and outpatient services/therapies to children.

First Steps
1 (866) 583-2392
Offers services to children from birth to 3 years with disabilities or developmental delays.

Healthy Families America
(312) 663-3520
Home visiting until 3rd birthday if enroll prenatally or w/in 3 months of birth.

Infant Toddler Services of Johnson County
(913) 432-2900

Kansas Head Start Association
(785) 856-3132

Lakemary Infant-Toddler Lakemary Center: Miami county
(913) 294-4343

Mid-America Regional Council (MARC)
(816) 841-3382
Missouri call to enroll in Early Head Start.

Parents as Teachers
(314) 432-4330
Check with local school district to enroll.

The Team for Infants Endangered by Substance Abuse (TIES) Program
(816) 234-3670
Wyandotte County KS and Jackson County MO, home based services referrals accepted up to 6 months post-partum and served until child is 2 years.

tiny-K Alliance
Use this resource to locate your local early intervention center.

Tiny-k Early Intervention-Douglas County
(785) 843-3059

Wyandotte County Infant-Toddler Services
(913) 627-5500

*See Daycare/Preschool section for additional resources regarding early intervention.

Ability KC Employment Services
Provides employment opportunities and vocational rehabilitation to individuals with a range of disabilities.

Expanding College for Exceptional Learners
(816) 363-4968
Integrates people with intellectual disability (ID) into KC community through higher education.

Kansas Vocational Rehabilitation
1 (866) 213-9079

Missouri Department of Education Postsecondary Transition
(573) 751-5739
Provides information on transition options, programs, resources, trainings and community efforts.

Missouri Vocational Rehabilitation
(816) 889-2581

MO Association of People Supporting Employment
Provides training and advocacy to improve and expand integrated employment opportunities, services and outcomes for people with disabilities.

MO Rehab Services for the Blind
1 (800) 592-6004

Project Rise
(816) 983-6994
Employment, volunteer, job preparation program through Children's Mercy for patients 15 years and older.

UMKC Propel
(816) 235-6340
Program w/in College of Arts and Sciences Psychology Dept allowing young adults with intellectual developmental disabilities opportunity to explore employment and education on major university campus.

University of Central Missouri THRIVE Program
(660) 543-4204
Program for young adults with intellectual disability/developmental disability (ID/DD) to participate in 2 year residential college experience, building skills to transition from home to independence.

 

Other community programs

Absolute Access and Elevator
(816) 447-7511
Stairlifts, home elevators, vertical wheelchair lift and dumbwaiters.

Access Elevators and Lifts
1 (800) 397-4000
Lift sales and installation.

Accessibility Remodeling
(913) 831-4444
Services: Home modification.

Amramp
(888) 715-7598
Wheelchair ramps, lifts and more. Free evaluation and estimate.

BraunAbility
1 (800) 488-0359
Services: Vehicle modification.

Country Home Elevator and Stair Lift
1 (888) 869-8883
Services: Lift installation.

Doctor’s Equipment
(816) 523-6644
Medical and accessibility equipment.

Four Seasons Sunrooms—Bath Planet (KS & MO)
(816) 524-2770
Services: Bathtub modification.

Health and Comfort
(816) 472-1100
Services: Stair, platform and vehicle lift sales and installation.

Jay Hatfield Mobility
(816) 600-5124
Services: Vehicle modification and complex rehab chair sales.

KC Lift and Elevator
(913) 327-5557
Services: Elevator, stir/ceiling, porch life installation and sales.

Lifewise CMH (Clinical Home Modifications)
(913) 380-4246
Services: Home modification (also does home assessments with OT).

Missouri Stairway Lift Corporation
1 (800) 392-2591
Services: Home modification.

Mobility First
(816) 350-7600
Services: Home and vehicle modification.

National Mobility Equipment Dealers Association
(866) 948-8341
Assists you in locating a certified dealer for adaptive vehicle.

New Mobility Solutions
(517) 768-0248
Services: Private Vehicle dealer in Michigan.

Paulding Mobility
(816) 326-8620
Services: Vehicle modification.

Prairie View Incorporated
1 (800) 554-7267
Services: Ramp installation.

Purple Ribbon Mobility LLC
(678) 572-4410
A small accessibility dealership run by a special needs family in Atlanta, Ga.

The Association for Driver Rehabilitation Specialists
(866) 672-9466
Locate mobility equipment dealers.

United Access
1 (888) 939-1010
Services: Vehicle modification and sales.

*See Home and Vehicle Modification Funding and Transportation sections for additional resources regarding accessibility.

Adult Abuse and Neglect Hotline
1 (800) 392-0210
Report abuse/neglect of adult in Missouri.

American Association of People with Disabilities
(880) 840-8844
Ensuring economic self-sufficiency and political empowerment for those with disabilities.

Americans with Disabilities Act
1 (800) 514-0301

Child Abuse & Neglect Hotline
1 (800) 392-3738
Report abuse/neglect of child in Missouri.

Child Advocacy Centers Kansas
List of Child Advocacy Centers (CAC) in Kansas. Find your local CAC.

Child Protection Center
(816) 778-8000
Forensic interviews and therapy for children in Jackson, Cass, and Lafayette counties.

Child Safe of Central MO Inc.
(660) 829-3434
Forensic interviews and therapy for children in Lafayette County.

Epilepsy Foundation of MO & KS
1 (800) 972-5163 or 1 (800) 264-6970
Supports to those with epilepsy/seizures.

Great Plains ADA Center
1 (800) 949-4232
Provides guidance to all on how to apply ADA standards to public services.

Kansas CASA
List of CASA programs in Kansas. Find your local CASA program.

Kansas Protection Report Center
1 (800) 922-5330
Report abuse/neglect of child or adult.

Lifehouse Child Advocacy Center
(785) 232-5433
Child advocacy center Douglas County.

Missouri CASA
List of CASA programs in Missouri. Find your local CASA program.

MO Governor's Council on Disability
1 (800) 877-8249
Hosts an online disability portal to connect individuals with local, state and national disability resources.

National Alliance on Mental Illness
1 (800) 374-2138 or (800) 539-2660
Support groups, family courses, resources and info to families of children with mental health needs.

Commissions for the Deaf & Hard of Hearing:

Information and referral for workshops, training, individual and systems advocacy.

Partners in Policymaking
1 (800) 500-7878
Leadership training program sponsored by Missouri Developmental Disabilities Council for self-advocates and parents of individuals with disabilities.

People First of MO
1 (800) 558-8652
Organization formed and run by people with developmental disabilities that provides members with advocacy and self-determination development and peer support.

Rare KC
Support for those whose children have rare genetic conditions and diseases.

Sunflower House
(913) 631-5800
Child advocacy center Wyandotte and Johnson County, Kan.

Synergy Services' Children's Advocacy Center
(816) 741-8700
Forensic interviews and therapy for children in Clay and Platte counties.

The ARC of Missouri
(816) 436-1704
Works to ensure that individuals with intellectual and developmental disabilities have access to the supports and services they need to live successfully in their communities.

68 Inside Sports Inclusive Program
(913) 888-9247

AbilityKC
(816) 513-7624
Adaptive swimming lessons for children ages 3-10 years old. Financial assistance available. Also provides driving rehabilitation.

Access II Independent Living Center
(660) 663-2423
Independent Living Center for Ray County, Mo.

Accessible Sports of Greater Kansas City Services
A website that lists many athletic and social programs that are inclusive for people of all abilities.

American Camp Association
(800) 428-2267
Search engine to find camps.

Camp Barnabas
(417) 476-2565

Challenged Athletes
(858) 866-0959
Provides opportunities and support to people with physical challenges, so they can pursue active lifestyles through physical fitness and competitive athletics.

Double H Ranch
(518) 696-5676
Camp for children with medical needs and their siblings in New York.

Families Together Inc.
(888) 815-6364

Inclusive Playgrounds
List of Kansas City’s best inclusive parks and playgrounds.

Independence, Inc.
(785) 841-0333
Independent Living Center for Douglas County, Kan.

Kansas City Ballet
Adaptive dance programs.

KC Treadz-Wheelchair Basketball
(816) 824-2370

Midnight Farm
(785) 979-1889
Accessible trails, horse drawn wagon rides, pumpkin and blueberry patches, accessible camp site, animal petting, disability accessible trails.

Midwest Adaptive Sports
(816) 287-2011

Missouri Family to Family
(800) 444-0821

Resource Center for Independent Living
(785) 242-1805
Independent Living Center for Miami County, Kan.

Special Needs Scouting
Traditional scouting for boys 6-adult and girls 14-adult.

Special Olympics Kansas
(913) 236-9290

Special Olympics Missouri
(913) 789-0330

The Association for Driver Rehabilitation Specialists
(866) 672-9466
Locate certified driving rehabilitation specialists.

The Whole Person Adaptive Sports Program
(816) 627-2229

The Whole Person
(816) 561-0304
Independent Living Center for Cass, Clay, Jackson, and Platte County (Mo.) and Johnson, Leavenworth, and Wyandotte County (Kan.).

West Central Independent Living Solutions
(660) 422-7883
Independent Living Center for Lafayette County, Mo.

Wonderland Camp
(573) 392-1000

YMCA Challenger Program
(816) 561-9622

*Contact your local Parks and Recreation Department to ask about any programming for special needs.

American Red Cross
1 (800) 733-2767
Disaster safety for people with disabilities

The Whole Person
(816) 561-0304
Resource list for further emergency planning

If your child relies on life-saving durable medical equipment that requires electricity, you are also eligible for medical customer programs through your energy company. Please note these programs will NOT prevent disconnect if you have an overdue bill, however being a part of these programs may grant you a temporary extension before disconnect and will definitely put you on a priority list to be re-connected in the event of a power outage. Here are a few of the local programs:

  1. Evergy
    (816) 471-5275
    Ask your primary care provider (PCP) to complete the Medical Customer application.

  2. Independence Power & Light
    (816) 325-7495
    Ask your PCP to complete the Critical Care application.

  3. Kansas City Board of Public Utilities (BPU) - Call (913) 573-9029 to start the application process. A staff member of BPU will visit your home to verify your need and then BPU will send PCP application to be completed.

*Talk to your primary care provider about a Pediatric Emergency Form that discusses common concerns, baselines, and pertinent treatment information.

Arcare
(913) 648-0233
Helps people set up advanced planning and trusts.

Disability Rights Center of Kansas
1 (877) 776-1541

Great Plains ADA Center
(573) 882-3600
Federally-funded by the ADA, provides technical assistance and education and training.

Justice in the Schools
(816) 945-7736
Legal help for anything that may negatively affect school attendance in the Kansas City and Hickman Mills school districts.

Kansas Bar Association
1 (800) 928-3111
Search tool to find attorneys.

Kansas Legal Services
(913) 621-0200
Help low and moderate income Kansans through legal and mediation services.

Legal Aid of Western Missouri
(816) 474-6750
Free legal representation to low income citizens.

Missouri Bar Association
1 (888) 253-6013
Search tool to find attorneys.

Missouri Legal Services
Four regional centers provide legal services for individuals with low-income or disabled.

Missouri Protection & Advocacy Services
(800) 392-8667

Special Needs Alliance
Use to locate an attorney that knows the intricacies of special needs law.

*You may want to check with your employer regarding employee benefits for legal services.

4 Paws For Ability
(937) 374-0385
Provides service dogs.

Assistance Dogs International
Shows you accredited service animal schools.

Canine Companions for Independence
1 (800) 572-2275
Provides assistance dogs free of charge to recipients.

Domesti-PUPS
1 (866) 515-PUPS
Provides therapy dogs, service dogs and rescue dogs.

KSDS Assistance Dogs, Inc
(785) 325-2256

National Network Information, Guidance, and Training on the Americans with Disability Act
1 (800) 949-4232
Reviews owners' rights and responsibilities where service animals are allowed, etc.

Optimist Club of Kansas City
(816) 433-4850
May be able to help with funding for service animal.

The Whole Person
(816) 627-2217
Sheila Styron, Blindness Low Vision Specialist has a lot of knowledge about service animals and is a helpful person to contact if you have questions.

US Department of Justice 
FAQs on service animals and the ADA.

Talk to disease specific advocacy groups for other sibling support resources such as groups or scholarships.

Attachment & Trauma Therapy
(816) 607-1775
Siblings of Special Needs Children Support Group; available for 7-13 year olds.

HopeKids
(816) 372-0311
Ongoing events and activities for children with life threatening conditions and their families

Turning Point
(913) 574-0900
Family and child life programming

 

Autism Society of the Heartland
(913) 706-0042
Provides support, education, and advocacy for the autism community.

Autism Speaks
(314) 989-1003
Promoting solutions for the needs of individuals with autism and their families through advocacy and support, increasing understanding/acceptance, and advancing research.

Children’s Mercy CARE Workshops
(816) 855-1720
Child-adult relationship enhancement workshops to strengthen parent/caregiver bond and increase positive behavior.

Complex Child
Monthly online magazine written by parents.

Courageous Parents Network
Destination created by parents to support, guide, and strengthen families that are caring for a seriously ill child.

Down Syndrome Guild of Greater Kansas City
(913) 384-4848

Families Together Inc
(316) 945-7747

Grace Church SOAR Special Needs Ministry
(913) 814-7223

HopeKids
(816) 372-0311
Ongoing events and activities for children with life threatening conditions and their families.

Missouri Family to Family
(800) 444-0821
Resource navigators, peer mentors.

MO Families for Effective Autism Treatment
1 (877) 275-8988
Advocacy, education, and support for families in the autism community and supports early diagnosis and effective treatment.

Parenting Children with Special Needs 
Resource directory which also includes disease specific supports.

Parent Offering Parent Support/Peer Mentor Program
(816) 302-8229
Children’s Mercy program that is a network of trained parent volunteers who mentor other parents through the challenges of their child's health condition.

Supporting You
(785) 296-8625
Provides peer supports for Kansans.

*Consider searching Facebook for support groups related to various diagnoses.

Center for Practical Bioethics
(816) 221-1100
Information on advanced directives, resuscitation orders, advanced care planning.

Courageous Parents Network
Destination created by parents to support, guide, and strengthen families that are caring for a seriously ill child.

Got Transition
(202) 769-0486
Many resources on the transition from pediatric to adult care.

Missouri Family to Family
1 (800) 444-0821
Lifecourse materials, information packets specific to diagnoses, guardianship stoplight decision making tool.

Palliative Care Team at Children's Mercy
(816) 855-1716
The Palliative Care Team can help you better understand your child’s diagnosis, talk about your treatment options, and determine what the best possible quality of life looks like for you and your child.

Pediatric Palliative Care Coalition
(412) 963-8243
Toolkits on care planning and caring conversations.

Transition to Adulthood
(816) 760-5550
Children’s Mercy’s program and resource center for helping patients transition to adult care, guardianship or supportive decision making.

Please communicate with your waiver support coordinator for list of options.

Kansas Centers for Independent Living
1 (833) 765-2003
Federally mandated centers provide info, advocacy, and access to supports and services based on principles of consumer choice and control.

Life Unlimited
(816) 456-5940
Community living with individualized support to help reach their maximum level of independence, self-direction, community inclusion and fulfillment while living in the home of their choice.

Missouri Statewide Independent Living Centers
1 (888) 667-2117
Federally mandated centers provide info, advocacy, and access to supports and services based on principles of consumer choice and control.

MO Inclusive Housing Development Corporation
(855) 444-5100
Accessible and affordable housing to those with disabilities.

*See Community Involvement section for additional resources regarding supportive living.

If your child has Medicaid, contact the number on the back of their insurance card for taxi transportation assistance to medical appointments as well as mileage reimbursement. Medicaid can also help in securing long distance travel to out of town approved medical appointments for patient and a caregiver. Talk to your social worker at your doctor's office if you need transportation assistance or if travel is not offered through your private insurance.

Children's Mercy Car Seat Program
(816) 234-1607

eSpecial Needs
1 (877) 664-4565
Adaptive equipment & special needs car seats.

First Hand Foundation
(816) 201-1569
Funding for travel costs for medical needs

Kansas Department of Health and Environment
(785) 291-3092 
Possible special needs car seat funding.

KS Dept of Revenue Division of Vehicle Services
(785) 368-8222
Disabled parking placard.

Miracle Flights
(800) 359-1711
Medical air travel and flights to obtain service dogs.

Missouri Dept of Revenue
(573) 526-3669
Disabled parking placard.

Operating Above the Standard (OATS)
(888) 875-6287
Disability transportation service in various counties in Missouri.

RideKC Freedom
(816) 842-9070
KC metro public transportation program providing door to door service.

Safe Kids Kansas
(785) 296-4491
Possible car seat funding.

Transportation Security Administration
(866) 289-9673
Helpline to assist air travelers with disabilities.

*See Home and Vehicle Modification Funding and Accessibility sections for additional resources regarding transportation

BADF Life Hunts
(205) 394-1072
Hunting trips.

Beads of Courage
(520) 344-7668
Medical story telling through beads. Ask your treating provider if their clinic has a bead program.

Believe in Tomorrow Children's Foundation
(410) 744-1032
Respite housing.

Children's Wish Foundation International
(800) 323-WISH

Cody’s Wheels of Hope
(814) 460-8228
Provides bicycles, riding toys and safety helmets for children with life-threatening diseases.

Do It For The Love
(844) 484-3568
Concerts.

Dream Factory of Greater Kansas City
(913) 905-2900

Icing Smiles
(443) 420-7096
Custom cakes.

Kids Wish Network
(888) 918-9004

Make A Wish
(314) 205-9474

McLindon Family Foundation
(225) 456-3505
Provides adaptive bikes for children with special needs.

Merlin's Magic Wand
Tickets to Merlin Entertainments.

Morgan's Wonderland
(210) 495-5888
Accessible theme park in Texas.

Special Spaces
(865) 249-6079
Bedroom makeovers.

Stepping Stones for Stella- Buggies for Life
(617) 785-0076
Provides buggies to children with disabilities to ensure they and their families experience joy and freedom of being outdoors.

Sunshine Foundation
(215) 396-4770

TinySuperheroes
Superhero capes.

United Special Sportsman Alliance
(715) 884-2256
Outdoor adventures.

Variety KC
(913) 558-2309
Go Baby Go! Program that provides modified toy ride-cares to children with special needs.

 

Health care resources

Please visit our Finding an Adult Care Doctor page for lists of adult specialty providers. It is also advised that you contact your insurance for referrals. Ask your current providers whom they would recommend for adult care.

Community Health Centers
Centers provide health and dental care to people of all ages whether or not they have health insurance or money to pay for care.

Got Transition
(202) 769-0486
Resources on the transition from pediatric to adult care.

Transition to Adulthood
(816) 760-5550
Children’s Mercy’s program and resource center for helping patients transition to adult care, guardianship or supportive decision making.

Association of CMHCs of Kansas, Inc
Map of local community mental health centers by county.

Behavioral Health Specialists
(913) 906-9559

Compassionate Friends
(877) 969-0010
Support groups and educational information for families who have lost a child at any age.

Child & Family Mental Health Services at Children's Mercy
(816) 760-8881

Congenital Heart Defects Families Association (CHD-FA)
Support group in KC for CHD families.

Developmental and Behavioral Health at Children's Mercy
(816) 234-3674

Information on Applied Behavior Analysis through Autism Speaks
(888) 288-4762

Keeler Women's Center
(913) 906-8990
Counseling, massages, English as a second language (ESL) classes and women's groups.

KU Medical Center Center for Child Health & Development
(913) 588-6300

Lakemary
(913) 557-4000
Outpatient therapy for emotional regulation, social interactions, impulse control, obsessive thoughts/behaviors, anger management and grief. Therapy for children or adults with ID and mental health concerns.

Metropolitan Organization to Combat Sexual Abuse (MOCSA)
(816) 531-0233
Advocacy and counseling for sexual abuse survivors.

Missouri Department of Mental Health
Search for local community mental health centers by county.

National Alliance on Mental Illness (NAMI) Missouri
(800) 374-2138
Offers support groups, family courses and resources to families of children with mental health needs at no charge.

National Parent Helpline
1 (855) 427-2736

Psychology Today
Search engine to find a local therapist.

Sisters by Heart
Resources and support for mother of children with hypoplastic left heart syndrome (HLHS).

The Family Conservancy
(913) 742-4357

The National Child Traumatic Stress Network 

Turning Point
(913) 574-0900

Ability KC
(816) 751-7700
Assessment and device ordering.

Kansas Assistive Technology-Northeast Site
(785) 267-1717
See/try devices, get help funding a device, get a refurbished device and assessment.

Missouri Assistive Technology
(816) 655-6700
See/try devices, loan program, and last resort funding for children.

Variety KC
(913) 558-2309
Communication (assistive technology) grant.

*Talk to your waiver or CDDO case manager for funding supports/insurance appeals.

Talk to your medical provider to learn how your natural supports can be trained to meet your child's medical needs.

Affordable Care Act
1 (800) 318-2596
Public marketplace.

Cover Missouri
(800) 466-3213
Helps consumers gain information and in-person assistance needed to understand their health insurance options and financial help available to them.

Extended Care Health Option (ECHO) Program for Military Families who have Tricare
1 (888) 958-7347
Provides financial assistance to beneficiaries with special needs.

Health Insurance Premium Payment (HIPP) Program
(800) 967-4660
Program that pays private health insurance premiums for those who have Medicaid in Kansas.

Health Insurance Premium Payment (HIPP) Program
(573) 751-2005
Program that pays private health insurance premiums for those who have Medicaid in Missouri.

KanCare
(800) 792-4884
Kansas Medicaid.

KS Dept of Insurance
(800) 432-2484 
Helps consumers resolve insurance complaints, investigates violations, and provides insurance education and outreach.

MO Dept of Insurance
1 (800) 726-7390
Helps consumers resolve insurance complaints, investigates violations, and provides insurance education and outreach.

MO Healthnet
(855) 373-4636
Missouri Medicaid.

UnitedHealthcare Children’s Foundation
(855) 698-4223
Grants provide financial assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.

*If you are uninsured or underinsured, some clinics offer sliding scale fees. Visit our Find an Adult Care Doctor page and select the primary care PDF for clinics.

Your child may be eligible for a private duty nursing, personal care aides, etc. with their Medicaid waiver or private insurance.

Advantage Nursing Services
(866) 383-3535
State of Missouri.

Advocate/Advocare Home Specialty Care
(785) 456-8910
Northeast Kansas counties.

All About You Health Services
(816) 260-9165
State of Missouri.

Assured Health Care
(816) 415-8200
State of Kansas.

Bayada Home Health Care
(816) 254-0781
State of Missouri.

Bureau of Special Healthcare Needs
(816) 350-5422
If you have MO HealthNet, must call this agency for an intake for in home supports. This program provides health care support services, service coordination, for children and adults with special health care needs who meet eligibility requirements. Programs include: Children and Youth with Special Healthcare Needs, Family Partnership, Healthy Children & Youth, Medically Fragile Adult Waiver and Adult Brain Injury.

Care Staff Home Care
(913) 498-2888 or (816) 268-6999
KC metro area.

Carousel Palliative Care and Hospice
(816) 363-2600
KC metro area.

Children's Mercy Home Care
(816) 701-4300
Skilled nursing.

Courageous Home Care
(816) 699-2352
KC metro area.

Craig Home Care
(785) 232-8221 or (816) 903-4022
Missouri and Kansas.

First Stat Nursing
(913) 451-5900
KC metro.

Help At Home
(816) 756-111
Missouri and Johnson County, Kan. home health aids only

Helpers Inc
(913) 322-7212
Kansas City, Kan. area home health aids only.

Hyatt Home Health Care
(816) 283-3200
Personal care aides only.

Integrity Home Care
(816) 254-3131
Missouri and Kansas.

Maxim Home Health
(913) 381-8233
Missouri and Kansas.

MHS Home Health
(816) 523-3333 or (913) 663-9930
Missouri and Kansas home health aides only.

Oxford Health Care
(417) 883-7500
Southern Missouri.

Phoenix Home Care
(816) 373-7442
Johnson County, Kansas and Missouri.

Sunshine Home Health Care
(913) 724-7500
Kansas skilled nursing visits.

180 Medical
(877) 688-2729
Urological supplies

Accessibility Medical Equipment
1 (866) 201-3829
Refurbished, low cost equipment.

Alterna Care
(913) 906-9260
Enteral supplies.

American Home Patient
(816) 241-4141
Enteral, respiratory and mobility supplies.

Apria
(888) 492-7742
Respiratory supplies.

Apria Refresh Enteral
(844) 260-1788
Enteral supplies.

Assistive Technology for Kansans
(785) 267-1717
Refurbished equipment.

Building Blocks for Kids
(513) 770-2900
Funds for therapy, therapy equipment, hearing aids, communication devices, home modifications, vans with wheelchair lifts, special beds, displacement costs when needing to see a specialist in another city, adaptive bikes, adaptive strollers, seizure dogs and so much more.

Byram HealthCare
(877) 902-9726
Wound care and urological supplies.

Cherub Medical
(913) 227-0440
Enteral, respiratory and urological supplies.

Children's Medical Services
(417) 882-9440
Enteral, wound care and urological supplies.

Children's Mercy Home Care
(816) 895-5000 
Enteral, respiratory, wound care and urological supplies.

Chuck's Mobility
(913) 859-0290 or (816) 525-2205
Rentals/pre-owned items.

Clock Medical Supply
(800) 362-1314
Enteral, wound care and urological supplies.

Coram Specialty Infusion
(800) 925-9800
Enteral supplies.

Cork Medical
(866) 551-2580
Hospital beds and specialty mattresses.

Criticare Home Health
(785) 749-4878
Enteral, respiratory and mobility supplies.

Daily Living Medical
(573) 234-2005
Orthotics and braces.

Doctor’s Equipment
(816) 523-6644
Urological and mobility equipment.

Edgepark Medical
(800) 321-0591 
Enteral, wound care and urological supplies.

First Choice Health
(417) 673-8090
Urological supplies.

Georgetown Pharmacy
(913) 362-0313
Urological supplies.

Giving Angels Foundation
(267) 332-1320
Awards grants to children under 21 years of age with physical disabilities or illness for life-changing equipment, medical supplies, essential family bills, specialized camps and therapeutic toys.

HDIS
(800) 367-8360
Urological supplies.

Heartland Medical Equipment
(800) 332-1463
Respiratory and mobility equipment.

Jett Foundation
(781) 585-5566
Fund program to help families impacted by Duchenne muscular dystrophy.

Kansas Equipment Exchange Reuse
(800) 526-3648
Helps Kansans obtain affordable DME and assistive technology, which is refurbished.

Lincare
(816) 224-0202
Enteral, respiratory and mobility equipment.

Medline
(866) 356-4997 Option 1
Enteral and respiratory supplies.

Midwest Respiratory Care
(913) 888-0477
Respiratory and home modifications.

Missouri Assistive Technology
(816) 655-6700
Equipment loan program, Show Me Loan, recycling program for DME.

My Gym Foundation
(818) 907-6966
Gives $500 or less towards rehabilitative therapy, My Gym classes, assistive devices, medical equipment and sensory items.

NuMotion
(816) 761-2526
Urological and mobility equipment.

Oley Foundation
1 (800) 776-OLEY
Donated supplies including enteral formula, pumps and tubing.

Option Care
(913) 599-3745
Enteral, respiratory and mobility equipment.

Project MEND
(210) 223-6363 ext. 3
Refurbished equipment.

Provider Plus Inc.
(913) 492-4548;
Enteral, respiratory and adaptive equipment.

Randolph Seating & Mobility
(816) 364-4357
Mobility equipment.

Rehab Specialty Medical
(573) 659-0630
Enteral, respiratory, wound care, urological and hospital beds.

Sleepcair
(913) 438-8200
Respiratory and hospital beds.

Special Products
(800) 553-3492
Urological supplies.

Team Joseph
(833) 428-3301
Program that financially assists families impacted by Duchenne muscular dystrophy.

The Arya Foundation
(314) 445-ARYA
Provides funds for adaptive equipment. Must be in the greater St. Louis area and have social work referral.

The Morgan Project
(321) 506-2707
Donated items that are available for cost of shipping or pick up.

Via Christi
(785) 537-3699
Enteral, respiratory, wound care, urological, and mobility equipment.

Wilkinson Pharmacy/DME
(417) 623-7907
Enteral, respiratory, urological and hospital beds.

BREATHE KS Archdiocese Special Needs Ministry
(913) 647-3054

Grace Church SOAR Special Needs Ministry
(913) 814-7223

Journey Bible Church Special Connections
(913) 764-8280

Matthew's Ministry
(417) 825-8137

Rewarding Work
1 (866) 212-9675
Search engine for Kansans to locate personal care attendants and respite support.

Call your local nursing schools for out of pocket childcare options. Some local options include:

*Speak to your waiver support coordinator about annual respite care hours that may be available.

Consult your insurance companies for referrals or speak to your insurance case manager.

21st Century Therapy
(816) 353-8585
OT, PT, ST, in home, aquatic, hippo, life skills, language enrichment, will accept Medicaid.

Ability KC
(816) 751-7700
Children's Therapeutic Learning Center, OT, PT, speech, communication device assessments, home assessments, driver's education, will accept Medicaid.

Advantage Speech Services, Inc.
(816) 407-0700
In home general and vital stem.

Autism Speaks
(314) 989-1003
Directory for ABA therapies.

Beyond Function
(913) 515-6298
OT.

Billings Speech Pathology Services
(816) 228-8393
PT, OT, ST, apraxia, autism, oral motor, accepts Medicaid, clinic based.

Britain Development
(913) 676-2000

Children's Mercy Outpatient Therapy Services
(816) 234-3000
OT, PT, SLT, will accept Medicaid.

Children's Therapy Group
(913) 383-9014
Clinic and in home, OT, PT, ST, sensory integration, therapeutic listening, autism.

Children's Therapy Services Inc
(913) 912-2174
OT, PT, SLT, behavioral therapy, social skills, dyslexia intervention, play therapy.

Clay County Public Health Department
(816) 595-4307
OT, PT, ST, Clay County residents only, accepts Medicaid, clinic based.

CPTA
(913) 345-1997
PT.

Easterseals Midwest
(816) 476-4011
Autism supports/ABA, preschool, home visiting.

First Steps
1 (866) 583-2392 
All Missouri residents, home based, PT, OT, ST, accepts Medicaid.

Gretchen Fischer
(913) 486-2299
Clinic based self-pay,ST

Infant Toddler Services of Johnson County
(913) 432-2900
Home based, PT, OT, ST, accepts Medicaid.

Joshua Child & Family Development Center
(816) 763-7605
Counseling, social skills, support groups, camp for children with neurological disorders.

Kansas City Developmental Therapies
(816) 769-3558
OT, ST, social groups, autism.

Lakemary Infant-Toddler Lakemary Center: Miami county
(913) 294-4343
Home based, PT, OT, ST, accepts Medicaid.

Lawrence Therapy Services
(785) 505-5000
Clinic based, ST, OT, PT.

Leavenworth County Infant Toddler Services Southeast KS Education Service Center USD #609
(913) 250-1111
Home based, PT, OT, ST, accepts Medicaid.

Marian Hope Center
(816) 695-1255
Accepts Medicaid, clinic based, OT, PT, ST, specialty groups, handwriting, feeding, language enrichment, play groups, music therapy, reading.

Outreach Therapies
(816) 588-3782
Clinic based and in home, accepts Medicaid, OT, PT, ST.

Paragon Speech Services
(816) 228-4310
In home and preschool, accepts Medicaid, pediatric feeding, swallowing, apraxia, ST.

Patricia Reiss
(913) 832-7925
In home, in private school, Johnson County, Kan. and Clay/Platte, Mo., ST, feeding, autism, motor speech disorders.

Pediatric Partners
Resource to help locate PT, OT, speech, learning disability specialists or mental health providers.

Pediatric Therapy Services, Inc.
(816) 523-5334
OT, PT, SLT, will accept Medicaid.

Play Abilities for Sensational Kids
(913) 213-3531
OT, PT, SLT.

Positioned to Learn
(913) 339-6109
In home, self-pay, ST.

PossAbilities
(913) 620-1007

Preferred Physical Therapy
(866) 412-5554

Premier Consulting
(816) 363-2052
In home and preschool for MO, general, autism, special skills group.

Sara Reieford
(913) 915-3135
In hom, ages 0-5 years, ST, apraxia, articulation and language.

Stephanie Beckner
(913) 579-1809
In home, self-pay.

The Children's SPOT
(816) 932-3832
PT, OT, SLT, preschool, accepts Medicaid.

Therapeutic Living Solutions
(913) 829-7775
In home and preschool, accepts Medicaid, OT.

Therapy in Motion
(816) 547-9654
PT.

Tiny-k Early Intervention-Douglas County
(785) 843-3059
Home based, PT, OT, ST, accepts Medicaid.

University Health-Lakewood
(816) 404-9362
Accepts Medicaid, clinic based, OT, PT, ST.

University of Kansas Medical Center
(913) 588-5937
Clinic based, accepts Medicaid, OT, PT, ST.

Wyandotte County Infant-Toddler Services
(913) 627-5500
Home based, PT, OT, ST, accepts Medicaid.

CDDO Johnson County
(913) 826-2600

CDDO Wyandotte County
(913) 573-5502

Center For Human Services
(660) 826-4400
Service coordination for Clay, Jackson and Platte counties.

Children's Resource Connection
(316) 721-1945 
Entry point for TA Waiver in Kansas.

Cottonwood, Inc
(785) 842-0550
CDDO in Douglas County, Kan.

EITAS
(816) 363-2000
Jackson County, Mo.

Kansas City Regional Office (KCRO)
(816) 889-3400 
Patients who live in Missouri should contact this agency to become connected to a support coordinator and further assessment for Department of Mental Health Waivers.

Kansas Waivers
Home and community based services (HCBS).

Missouri Waivers

Platte County Board of Services
(816) 891-0990

Riverside Resources, Inc
(913) 651-6810
CDDO in Leavenworth County, Kan.

Tri-Ko, Inc
(913) 755-3025
CDDO in Miami County, Kan.

 

Financial assistance

Economic Relief Pilot Program through Salvation Army
(816) 756-5392
Missouri residents only. Must be eligible based on family income.

Health Well Foundation
(800) 675-8416
Provides financial assistance to cover cost of prescription drug coinsurance, copayments, deductibles, health insurance premiums and selected out of pocket health care costs.

Kansas City's Medicine Cabinet
(816) 276-7517
Short term assistance with emergency dental care, diabetic supplies, durable medical equipment, prescriptions and eyeglasses.

Kansas Department of Children and Families
(833) 765-2003
Information, locations of local WIC offices and nutrition education.

Kansas WIC Program
(785) 296-1320
List of local health departments where you can go to apply for WIC.

Keep Swimming Foundation
(262) 264-8881
Financial assistance for those whose family member has had extended hospitalization.

KS Low Income Energy Assistance Program
(800) 432-0043
One time per year paying portion of home energy costs/application period January through March.

Link for Care
Database for resources.

Missouri Department of Social Services
(855) 373-4636
Find local family support division centers and info on how to apply for TANF, food stamps, childcare assistance and child support.

Missouri WIC Program
(800) 392-8209
Locations, income guidelines, FAQs.

MO Housing Development Commission
(816) 759-6600 or (314) 877-1350
Coordinates grants and low cost loans for affordable housing and home repairs.

MO Inclusive Housing Development Corporation
(855) 444-5100
Provides info on accessible and affordable housing.

MO Low Income Home Energy Assistance Program
(855) 373-4636
One time payment for primary heating bill November through March or energy crisis intervention program year round with limited amounts.

RareCare Program through National Organization for Rare Disorders
1 (800) 999-6673
Medication, financial assistance with insurance premiums and copays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Rx Assist
Directory of patient assistance programs run by pharmaceutical companies.

United Way 211
Call 211 or (816) 474-5112, option 5 for resources in your zip code.

*If your child relies on life-saving durable medical equipment that requires electricity, you are also eligible for medical customer/life support/medically fragile programs through your energy company. Please note these programs will not prevent disconnection if you have an overdue bill. However, being a part of these programs may grant you a temporary extension before disconnection and will put you on a priority list to be reconnected in the event of a power outage. Call your energy company to learn how to become a part of that program.

Academy of Special Needs Planners
(866) 296-5509
Articles on special needs topic, directory of special needs planners.

Jerry Bell
(913) 345-2323
Estate planning attorney fluent in special needs trusts and guardianship.

Kansas ABLE Savings Plan 
(888) 609-8919

Leslie Byran
(913) 486-0268
Estate planning attorney fluent in special needs trusts and guardianship.

Midwest Estate Plan
(913) 262-2000
Offer free educational workshops on special needs planning.

Midwest Special Needs Trust
(573) 256-5055
Administers special needs trusts.

MO ABLE
(800) 439-1653

MoneySmartKC
(888) 815-8016
Financial counseling and connection to local financial resources.

National Care Advisors
(800) 652-7404
Assists with benefits access/issues, quality of life planning (cost of future care) and resolving case management issues.

Northwestern Mutual
(913) 748-0660
Financial planner/free consults.

*Talk to your bank to see if they have a special needs planning center.

Mission: Christmas - City Union Mission
Christmas store and food for a holiday meal for income-qualified families.

Parenting Children with Special Needs 
Santa's Miracle application, lifetime program.

Sack it for Santa - Love Fund for Children
Holiday gift sacks for teens ages 12-18 years for income-qualified families. Requires a social work referral.

Santa's Little Hackers
Adapted toy.

*Call United Way 211 (816) 474-5112, Option 5 to learn about other holiday assistance programs in your area.

Check with your Medicaid waiver support coordinator before utilizing the resources below. Funding is typically available through many of the waiver programs for home and vehicle modifications. If you’re unable to obtain enough funding through a waiver, consider community supports or ideas below for additional fundraising.

1-800-Charity Cars
(800) 242-7489

Braun Ability
(800) 488-0359
Financial information about modified vehicles. Grants and other funding assistance available.

Building Blocks for Kids
(513) 770-2900
Funds for home modifications and vans with wheelchair lifts. Charity that donates cars to deserving individuals and families.

Children and Youth with Special Healthcare Needs Program MO
(816) 513-6143
Limited funding for medically necessary diagnostic and tx services/durable medical equipment (DME).

Chive Charities
Funding for DME, home and vehicle modifications for people with rare medical conditions.

Christmas in October
(816) 531-6443
Home rehab services limited times throughout the year.

Eudora United Methodist Church
(785) 542-3200
Minor ramp building in Lawrence, Kan.

First Hand Foundation 
(816) 201-1569
Funding for DME, travel, vehicle lifts and other health care costs.

Friends of Man
(303) 798-2342
Financial assistance for prostheses, wheelchairs, medical equipment, mobility equipment and/or hearing aids. Requires a social work referral.

HeRO Program-Home Repair Opportunity Program
(816) 759-6600
Funding for home repair and modifications for rural Missouri.

Hope Builders
(888) 467-3001
Free/discounted home repair and accessibility modifications in KC metro.

Jett Foundation
(781) 585-5566
Fund program to help families impacted by Duchenne muscular dystrophy.

Kansas Assistive Technology-Northeast Site
(785) 267-1717
Assessments, environmental and vehicle modifications.

K-Loan
(866) 465-2826
Low interest loans for assistive technology in Kansas.

Love Fund For Children
(816) 932-9170
Financial assistance for specialty medical equipment. Requires a social work referral.

Magic Mobility
(732) 397-5056
Connection to local resources for van.

Metropolitan Lutheran Ministries
(816) 931-0027
Assists with access issues and minor home repairs for low income homeowners in KC metro.

Midwest Special Needs Trust 
(573) 256-5055
Grant funding for services or equipment not covered by insurance.

Missouri Cattleman's Association Children's Fund
(816) 271-7200
Provides up to $500 matching funds in Missouri.

Northland Neighborhoods
(816) 454-2000
Home repair in Clay and Platte counties in Missouri.

Parenting Children with Special Needs
Grant funding available for medical needs, medical equipment, emergency financial needs, prevention and/or mobility.

Ramps.org
(847) 680-7700
Database to locate organizations that provide funding and building services”

Rebuilding Together
(816) 781-8985 or (913) 248-2802
Home rehab and modification for low income home owners.

Redemptorist Social Services Center
(816) 931-9942
Minor home modifications, assists different zip codes each week.

Show Me Loans
(800) 647-8557
Low interest loans for assistive technology in Missouri.

Special Healthcare Needs-KS
(913) 573-8863 or (913) 249-2431
Allows for specific requests for financial support of medical equipment, specialized care, education, or other needed items that can improve health status, function, or quality of life.

Spina Bifida Association of Greater Kansas City
(816) 277-9087
Funds for medical equipment for children with spina bifida.

Team Joseph
(833) 428-3301
Program that financially assists families impacted by Duchenne muscular dystrophy.

The Kansas Society for Children with Challenges
(316) 262-4676
Funding for DME, home and vehicle modifications.

The Paisley Mae Foundation
(928) 243-2499
Financial assistance.

The Whole Person
(816) 561-0304
Home assessments, ramp construction, minor home modifications.

Union Local 249
(816) 454-6333
Free labor to install ramps and writes grants to help fund supplies. Contact Kim Rowland for more info at 816-805-4807.

United Healthcare Children's Foundation
(855) 698-4223
Financial assistance for medical services, treatments, therapies and/or medical equipment for children who have commercial insurance as primary.

United Cerebral Palsy
(800) 872-5827
Grants may be available to fund assistive technology and vehicle modifications for children with cerebral palsy.

Variety KC
(913) 558-2309
Mobility grant for van lift, home modifications, stair ramp, wheelchair, etc.

West Central Independent Living Solutions
(660) 829-1980
Lafayette County,Mo., minor home modifications.

Wheelchairs 4 Kids
(727) 946-0963
Provides custom wheelchairs, widensdoors, builds ramps and provides wheelchair lifts and carriers for vehicles. Other services including standers and gait trainers.

*See Accessibility and Transportation sections for additional resources regarding modifications.

 

County resource guides

*Children’s Mercy provides this list of resources as a courtesy only and the list is not exhaustive. It is compiled from resources that Beacon Program families and team members have shared as helpful. These provided resources do not constitute an endorsement or recommendation by Children’s Mercy of the web sites, the information contained therein, the organizations, or the services provided.