Hemophilia Treatment Center
Children's Mercy provides comprehensive treatment for pediatric patients with hemophilia and other bleeding disorders. Our team provides a full range of diagnostic, treatment, and preventive options for hemophilia, von Willebrand disease, and other bleeding disorders.
Pediatric Hemophilia Staff
Children receive dedicated care and support from an expert clinical team that includes physicians, nurses, nurse practitioners, social workers, research specialists, and physical therapists. Patients benefit from a personalized approach to care that focuses on their unique needs.
What to Expect During the Clinic Visit
Comprehensive visits are longer than a normal doctor visit because you will speak with all members of the the care team – doctor, nurse, social worker, and physical therapist. Expect comprehensive clinics to last one to three hours. Arriving at your scheduled time assists us in moving quickly and is greatly appreciated.
What to Bring
- A log of bleeds and infusions during the past year or more
- A list of current medications
- A list of any recent changes to your health that you would like us to know
- A list of questions you might have for the team
- Our Hemophilia Treatment Center is a federally designated HTC.
- Our team has established a partnership with Truman Medical Center to ensure a smooth transition to adult care.
- Our team provides 24-hour on-call services for emergencies and emergency consultations.
- The bleeding disorders team is part of a national network of Hemophilia Treatment Centers providing the latest treatment for patients in Kansas and Missouri.
- We offer events including camp, a young women's clinic, a transition program, Saturday clinics, and regional outreach clinics.
- We also provide comprehensive laboratory monitoring and follow-up.
- We have a 340B Factor Program, which lowers the cost of factor for eligible hemophilia patients.
Hemophilia is a rare disorder in which the blood does not clot normally. It is usually inherited and is most common in males. The Hemophilia Clinic offers comprehensive services to help treat and prevent this condition.
- Coordination of care with child’s primary care physician
- Hematological management for dental procedures
- Diagnostic evaluations for hemophilia, von Willebrand disease, and other bleeding disorders
- Opportunities for participation in research on bleeding disorders and their effects and treatments as well as access to clinical trials of experimental therapies
- 24-hour on-call services for emergencies, as well as emergency consultations
- Multidisciplinary team approach used for management and comprehensive evaluations
- Case management on an outpatient and inpatient basis
- Counseling for persons with bleeding disorders and their families
- Referrals to appropriate services and agencies
- Comprehensive laboratory monitoring and follow-up
- Education to aid in controlling and preventing bleeding episodes
- Reimbursement resources and assistance
- Education to physicians, health professionals, schools, and other groups
- Collaboration with the Centers for Disease Control and Prevention, the National Hemophilia Foundation, the Midwest Hemophilia Association and other agencies involved in the bleeding disorders community