Teens with illnesses or disabilities tell their stories

Books:
Krementz, Jill.
How it feels to live with a physical disability.
WB 320 KRE 192

Rapp, Emily
Poster child: a memoir
WE 865 Rap 2007

Dorfman, Elena, 1965-
The C-word : teenagers and their families living with cancer
WH 850 D695C 1998

Smith, Patty, 1962-1981.
Mango days : a teenager facing eternity reflects on the beauty of life
WH 850 S656M 1993

Through and beyond : 13 teenagers share their battles with cancer / edited
by Molly Field ; with a foreword by Senator Edward Kennedy.
WH 850 T531 1998

Melluish, William G.
Diabetes at 14 : choosing tighter control for an active life
WK 850 MEL 2000

Irwin, Cait
Monochrome Days: a firsthand account of one teenager’s experience with depression
WM 171 IRW 2007

Wells, Joe
Touch and go Joe: an adolescent's experiences of OCD
WM 176 WEL 2006

Bloss, Nick van
Busy body: my life with Tourette’s Syndrome
WM 197 BLO 2006

Anglada, Tracy
Intense minds: through the eyes of young people with bi-polar disorder
WM 207 ANG 2006

Jamieson, Patrick E.
Mind race: a firsthand account of one teenager’s experience with bipolar disorder
WM 207 JAM 2006

Kulp, Liz
The best I can be: living with fetal alcoholism syndrome/effects
WQ 211 KUL 2000

Huegel, Kelly
Young people and chronic illness: true stories, help, and hope.
WS 200 H87Y 1998

Krementz, Jill
How it feels to fight for your life.
WS 200 K92 1989

Nixon, Shelley
From where I sit: making my way with cerebral palsy
WS 342 NIX 1999

Videos:
Morgan, Wendy.
Normal for Us : the Miller twins. [58 min. VHS] / produced by Oregon
Public Broadcasting.
This documentary follows the lives of 14 year-old Miller twins, Mariya and Michelle,
diagnosed with spinal muscular atrophy as infants, in Soldotna, Alaska. With the help of
custom wheelchairs, they live a unique and active lifestyle that includes horses, dogs,
livestock, and frequent forays into the Alaskan landscape.
WE 550 NOR 2002

"I am not dystonia" [20 min. VHS] / Dystonia Medical Research Foundation.
Children and teens with dystonia tell their stories..
WL 390 I11 2000

What am I, chopped liver? Communicating with your doctor [15 min. VHS] / Starbright
Foundation.
In this video, teen patients describe their experiences communicating with doctors and
hospital staff, and advise others on how to participate in their own health care.
WS 462 W555 1998

Web:
Band-aides and Blackboards: Teens tell their stories
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/teenstory.html

Look for these in the Kreamer Family Resource Center
Children's Mercy Hospitals & Clinics