Resources for families
Networks, Resources and Directories
These sites will help you find many metro, state, and national resources for health information, financial assistance, counseling, clothing, food, transportation, and other support.
Librarians can help you find books, videos, websites, support
groups, and other resources to answer your questions. Anyone living
in the Kansas City metro area may register for a library card to
access books and online resources!
Books and Websites
See our list of books that are written especially for you and your
child. If you are looking for medical information to help you,
makes sure to check these websites for information you can
School is a very important part of a child's life as preparation
for the future. You should know your child's rights if your child
has special needs. These resources will allow you to learn more
about your child's rights to the best possible education.
The resources listed below may help you with decisions you may make if your child if approaching the end of life. Hospital chaplains, palliative care teams, social workers, and hospice personnel can help you think through these issues and express your wishes to the other people involved. Discuss the option of hospice care with your healthcare team. Hospice care can offer the child and the family emotional support, comfort measures, and care. Kansas City has hospice programs for young adults, children, and infants.
Traveling and Safety
Children of all ages have special safety needs while traveling in a car, on a plane, or when going on a vacation. These resources will show you what to do or who to talk to about staying safe.
Recreation Therapy, Pet Therapy, and Service Animals
The therapeutic touch of pets and volunteers for people bound by
their illness is special for all pediatric patients. Pets visit
people in local hospitals, shelters, treatment centers and nursing
homes in the Kansas City metropolitan area. Recreation therapy can
make the child's experience a social one and a meaningful one.
Caring for a chronically ill child can be expensive! Get to know
your health insurance plan and what it covers. To contest, or
argue, a denial of claim, refer to your insurance plan. Ask your
doctor for a letter that explains why the tests, procedures, or
other medical care were needed. Check with your employer's Human
Resources department or bebefit's Specialist for help with