Resources for families
Networks, Resources and Directories
These sites will help you find many metro, state, and national resources for health information, financial assistance, counseling, clothing, food, transportation, and other support.
Librarians can help you find books, videos, websites, support
groups, and other resources to answer your questions. Anyone living
in the Kansas City metro area may register for a library card to
access books and online resources!
Books and Websites
See our list of books that are written especially for you and your
child. If you are looking for medical information to help you,
makes sure to check these websites for information you can
School is a very important part of a child's life as preparation
for the future. You should know your child's rights if your child
has special needs. These resources will allow you to learn more
about your child's rights to the best possible education.
|Accessible Homes and Assistive Technology
These resources will help you learn more about home modifications
and technology to reduce mobility barriers. People with
disabilities deserve a confortable home to fit their mobility needs
and access to technology to use for mobility and communication in
their everyday lives.
These resources will help you learn more about vehicle
modifications and vehicle options to reduce transportation
barriers. People with disabilities have special transportation
needs and deserve the utmost confort and safety when using
Recreation Therapy, Pet Therapy, and Service Animals
The therapeutic touch of pets and volunteers for people bound by
their illness is special for all pediatric patients. Pets visit
people in local hospitals, shelters, treatment centers and nursing
homes in the Kansas City metropolitan area. Recreation therapy can
make the child's experience a social one and a meaningful one.
Traveling and Safety
Children of all ages have special safety needs while traveling in a
car, on a plane, or when going on a vacation. These resources will
show you what to do or who to talk to about staying safe.
Caring for a chronically ill child can be expensive! Get to know
your health insurance plan and what it covers. To contest, or
argue, a denial of claim, refer to your insurance plan. Ask your
doctor for a letter that explains why the tests, procedures, or
other medical care were needed. Check with your employer's Human
Resources department or bebefit's Specialist for help with
The resources listed below may help you with decisions you may make
if your child if approaching the end of life. Hospital chaplains,
palliative care teams, social workers, and hospice personnel can
help you think through these issues and express your wishes to the
other people involved. Discuss the option of hospice care with your
healthcare team. Hospice care can offer the child and the family
emotional support, comfort measures, and care. Kansas City has
hospice programs for young adults, children, and infants.