B. Getting your (medical) records straight.
copies of your past medical history. Many of their decisions
will be based
on what's happened in the past.
We encourage teens and parents to keep track of this
information all along the way. It is likely though, that your new
doctor will need some specific information from your Children's
Mercy medical team. To get that information sent to your new
doctor, here's what to do:
-Send a written release of information to Children's
Mercy Hospital and Clinics to
the attention of the Medical Records department.
There is a sample in the forms section or you can get from your
Children's Mercy provider.
-Remember that once you are 18 years old, you need
to sign for your own
-The release of information form must have the name,
address, and phone number of your new physician so that they can
send the records directly.
-Indicate on the form that this release of
information is for transfer of ongoing
C. School and work choices
Having a chronic condition can obviously influence
your further school and
work choices. Here are some questions to help
evaluate your choices.
What will I do after leaving high
What are my life goals?
Where to find employment and training services,
What about getting around -
What kinds of accommodations and technology do
What will I do for income?
What would the physical requirements of my
What type of insurance coverage is offered? Are
there any exclusions or
What community agencies/ programs are available
to assist me?
Where will I live?
How close is the nearest hospital? Are they
able to handle the type of
care I would likely need? What type of
emergency transportation is
What do I want from my social life, hobbies,
leisure time, and
There are many resources available to help you sort
out these questions. Your
parents, doctors and nurses, social workers,
teachers, guidance counselors, and community organizations can all
D. Processes for getting
medications and medical equipment
By now hopefully you have
learned all your medications, what they do, and why
you need them. Continuing to
take your medications is a major factor in staying
Make sure that you understand
how to get your prescriptions (new and refills)
from your doctor, how to get
them filled at the pharmacy, and what to do when
you're running low.
Find out who and when to call
to replace equipment and supplies. What do you
do if your equipment quits
Each provider and insurance
plan varies, so be sure to ask in detail. Medication
and equipment costs need to
be considered when figuring your living
E. Ongoing insurance
Most teens have insurance
coverage either through their parents or a state
agency such as Medicaid.
These programs all have age limitations, depending
on work status and physical
Talk with your social worker
or case manager to explore other coverage
options. Public Insurance/
Services such as EPSDT, SCHIP, Medicaid Home &
Community Based Waivers,
Medicaid & Section 301, Medicaid Buy-in, Medicare,
Medicaid & Medicare/Dual
Eligibles, Medicaid & Medicare While Working are
options to explore.