Bioethics REFERENCES - Newborn Genetic Screening
Bioethics REFERENCES - Newborn Genetic Screening

NEWS ARTICLES

Dockser Marcus A. New tests for newborns, and dilemmas for parents. Wall Street Journal. July 26, 2011.

REFERENCES

Baily MA, Murray TH. Ethics, evidence, and cost in newborn screening. Hastings Cent Rep. 2008 May-Jun;38(3):23-31.

Baily DB Jr, Skinner D, Davis AM, Whitmarsh I, Powell C.  Ethical, legal, and social concerns about expanded newborn screening: fragile X syndrome as a prototype for emerging issues. Pediatrics. 2008 Mar;121(3):e693-704.

Botkin JR, Clayton EW, Frost, NC, Burke W, Murray TH, Baily MA, Wilfond B, Berg A, Ross LF. Newborn screening technology: proceed with cautionPediatrics. 2006 May;117(5): 1793-9.

Burke W, Tarini B, Press NA, Evans JP. Genetic screening.Epidemiol Rev. 2011;33(1):148-64. Epub 2011 Jun 27.

Dunn CT, Skrypek MM, Powers AL, Laguna TA. The Need for Vigilance: The Case of a False-Negative Newborn Screen for Cystic Fibrosis. Pediatrics. 2011 Jul 4.[Epub ahead of print]

Elespuru RK. Assessment of heritable genetic effects using new genetic tools and sentinels in an era of personalized medicine.Environ Mol Mutagen. 2011 May;52(4):253-63.

Gonzalez JL. Ethics for the pediatrician: genetic testing and newborn screening. Pediatr Rev. 2011 Nov;32(11):490-3.

Green NS, Dolan SM, Murray TH. Newborn screening: complexities in universal genetic testing. Am J Public Health. 2006 Nov;96(11):1955-9. Epub2006 Mar 29.

Kerruisch NJ, Robertson SP. Newborn screening: new developments, new dilemmas. J Med Ethics. 2005 31:393-398.

Nelson RM, Botkjin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, Harrison CE, Kazura A, Krug E 3rd, Schwartz PA, Donovan GK, Fallat M, Porter IH, Steinberg D; Committee on Bioethics. Ethical issues with genetics testing in pediatricsPediatrics. 2001 Jun;107(6):1451-5.

Orzalesi M, Danhaive O. Ethical problems with neonatal screeningAnn 1st Super Sanita. 2009;45(3):325-330.

Pennings G, Schots R, Liebaers L. Ethical considerations on preimplantation genetic diagnosis for HLA typing to match a future child as a donor of haematopoietic stem cells to a siblingHum Reprod. 2002;17(3):534-8.

Potter BK, Avard D, Entwistle V, Kennedy C, Chakraborty P, McGuire M, Wilson BJ. Ethical, legal and social issues in health technology assessment for prenatal, preconceptional and newborn screening: a workshop report. Pub Health Genomics. 2009;12:4-10.

President's Council on Bioethics. The changing moral focus of newborn screening: an ethical analysis by the president's Council on Bioethics. Washington, DC. December 2008.

Screening newborns: current state and future challenges. Abstracts of the International Congress on Prevention of Congenital Diseases. Vienna, Austria. May 13-14, 2011. [No authors listed] J Inherit Metab Dis. 2011 May;34 Suppl 1:S1-16.

Wilkinson S. Eugenics talk and the language of bioethics. J Med Ethics. 2008;34:467-471.

 

 

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