Inflammatory Bowel Disease Clinic Patient Resources
Inflammatory Bowel Disease Clinic Patient Resources

What to Expect During Your Visit

Learn what to expect prior to your child's visit and get answers to frequently asked questions. 
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Adherence

  • Adherence Tips and Strategies – Helpful hints that can help you remember to take your medications and to become more independent in managing your IBD
  • Adherence Apps – Cell phone apps that can help you remember to take your medications. Many are free!

Nutrition

General Resources

  • Crohns and Colitis Foundation of American (CCFA) – This is the official website of the Crohn's and Colitis Foundation of America.
  • CCFA Camp Oasis – Camp Oasis is a summer camp for boys and girls with Crohn's and colitis, entering 3-10th grade. It is staffed by physicians, nurses, and mental health professionals with experience working with youth with IBD.
  • UC and Crohn's- a site for teens – A website for teenagers and young adults who have Crohn's Disease and Ulcerative Colitis, created by the Crohn's & Colitis Foundation of America and the Starlight Children's Foundation.
  • GI Buddy App – An iPhone® app that allows patients with IBD to track symptoms and treatments, log the foods you eat, and more.
  • Starbright World – An online social network for teens (ages 13 - 20) with serious illnesses including IBD, and siblings of ill teens.
  • GIKids – The outreach and education effort of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition
  • IBD University – A site for older teenagers preparing to enter young adulthood, supported by Children’s Digestive Health and Nutrition Foundation, NASPGHAN, and the Starlight Foundation.

Schools: Things to Know

Transition and Transfer of Care

Resources for for transition of care into adulthood, or transfer of care to another physician.

Books

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